Comments on: Aphasia from brain injury

By: Michelle #jumbledbrain

Michelle #jumbledbrain — Sat, 30 Jul 2022 22:59:08 +0000

In reply to JW. I'm sorry you have such struggles and I hope you can find the right therapies to help you with them.

By: JW

JW — Sat, 30 Jul 2022 22:53:40 +0000

I don’t have a diagnosis, but I strongly suspect I have a brain injury, probably from either during my toddler years or earlier. I never remembered not being like this. So many things seem to fit. I think I’ll look for an official diagnosis soon and may look for suppoted work. I can’t work most jobs but the usa wants to control disabled people so much. So many things on here fit.

I have to speak short, fast sentences, or my brain forgets both where the thought started from and where the thought was going. I can’t repeat what I just read from a menu second earlier while looking at the wait person. My brain forgets it almost immediately. It usually comes back, but not usually when I need the information. I focus so much on retaining the info I heard or keeping what I said if planned to say in mind, talking is insanely hard. I feel like I just make up everything i say on the spot. Socializing is so exhausting. I’ve been told most people like me but few want to talk with me. I know it can be hard to be around someone who either can barely communicate or just is silent for long periods. It’s frustrating for me because I do have a lot to say. It just never seems like it. I’m so tired of it. Thanks

By: Michelle #jumbledbrain

Michelle #jumbledbrain — Mon, 02 May 2022 20:17:41 +0000

In reply to Gretchen A Hambright. That's really frustrating I imagine. Thanks for sharing as I think that's one that people hear of less.

By: Gretchen A Hambright

Gretchen A Hambright — Mon, 02 May 2022 18:52:23 +0000

My issue is that I can remember the word, but it gets stuck in my mind’s eye. Spelled out perfectly, but whatever the mechanism that moves it from my mind to my mouth doesn’t work right all the time.

By: Rose

Rose — Wed, 11 Jul 2018 21:50:47 +0000

My daughter struggles with this too. Like you she was a brain when it came to spelling, and now she struggles. She recently called a swamp a lake- so it is things like that. Though she laughs at herself and we all make light of it, it must be difficult.

By: michelle.munt@yahoo.co.uk

michelle.munt@yahoo.co.uk — Sun, 01 Jan 2017 11:44:03 +0000

In reply to Juliette. It's so strange when you know that you know but something isn't adding up. Wishing you all the best for your continued recovery.

By: Juliette

Juliette — Sun, 01 Jan 2017 02:40:55 +0000

It is definitely something I struggle with regularly. Particularly, as you say, when its been a full day, or they or I am trying to speak to quickly. Yesterday, I was trying to spell UGLY (for the song u-g-l-y you ain’t got no alibi…from the 80’s) And kept recersing the L with the G, my husband snickered, and I had no idea it’d happened. He had to literally spell it out for me before I understood my mistake.
Words escape me or the wrong one comes out, and I find myself embarassed, and the affirming it is my brain injury & “not me”.
I’m only 7 months since the car accident, so I am still working on it.

By: michelle.munt@yahoo.co.uk

michelle.munt@yahoo.co.uk — Sat, 12 Nov 2016 10:34:28 +0000

In reply to Jo Wood. You're so right, and it's weird that the hospital didn't have anyone who understood sign language. It's so frustrating to feel you're not understood. Thanks for sharing your experience it helps put things into perspective.

By: Jo Wood

Jo Wood — Sat, 12 Nov 2016 09:48:34 +0000

Hello, I am suffering from aphasia, it is improving since the seizure and brain surgery. I totally lost my speech as a result from a large brain tumour putting pressure on my brain, causing a seizure. The words where in my head, but just wouldn’t come out of my mouth. I too had a facial droop, so panic stations at work they thought I had had a stroke. The thing was I am a sign language interpreter for the deaf in a primary school, I could still sign, I could physically put the words in my head into sign language but not into speech. Some how I could hook a word in my head and physically use my hands. In the panic and upset during my seizure I was forced to sit down, it was trying to explain in sign that it was just my speech, I wasn’t in pain, I was confused to what had happened, my speech has gone, the words won’t come out. They just wanted me to sit so held me in place. This made me very distressed and I started crying, just give me my hands back I will explain. it wasn’t until I was in the ambulance, my arms and hands where freed that I could explain with sign and slurred mixed up words I could communicate. Gosh what an insight I got into how the deaf children I teach must feel when they can’t express themselves and nobody understands what they are trying to say. The distress makes it worse too. I had an emergency craniotomy to remove the tumour, I continued to use sign language to hook the words from my head into speech, nobody in the hospital could sign, surprising even the basic questions ‘I need to go to the toilet’, ‘ headache’ ‘what time is it’ couldn’t be exchanged. How a deaf person or mute person copes in those situations must be very distressing. Slowly my speech has returned, its laboured and mixed up sometimes, I forget words and make up my own, if I am stressed or don’t sleep the words go and that is frightening. I know now to avoid the triggers that will cause my speech to fail, not put myself in situations where I will stumble over words and take it slowly, breathe in conversation, practice in my head my response before I say it. I still use my hands sometimes if it’s a difficult day, it helps. Most of all I can see what a lonely world it can be for those who can’t communicate easily, don’t be hard on yourself, slowly the words will come, poorly brains need time to find a new route to communicate. ?

By: michelle.munt@yahoo.co.uk

michelle.munt@yahoo.co.uk — Sat, 15 Oct 2016 10:52:43 +0000

In reply to Jane Gersch. Jane I'm glad you got use from my blog. Thanks for tip of the Lecithin, I will have to try that. ?