Comments on: Brain injury and the debilitating impact of social isolation https://www.jumbledbrain.com/brain-injury-and-the-debilitating-impact-of-social-isolation/ Discover - Empower - Thrive Fri, 09 Sep 2022 15:24:33 +0000 hourly 1 By: Michelle #jumbledbrain https://www.jumbledbrain.com/brain-injury-and-the-debilitating-impact-of-social-isolation/#comment-1563 Wed, 08 Apr 2020 20:43:39 +0000 https://www.jumbledbrain.com/?p=9127#comment-1563 In reply to Alison Empey.

It’s amazing how any change to your routine as well as peace and quiet and take it out of you. I hope your husband gets well soon so he can work more in the garden and you both can have your space.

]]> By: Alison Empey https://www.jumbledbrain.com/brain-injury-and-the-debilitating-impact-of-social-isolation/#comment-1562 Wed, 08 Apr 2020 17:38:59 +0000 https://www.jumbledbrain.com/?p=9127#comment-1562 This lockdown has definitely affected me….because hubby is home. He’s a teacher so he’s home during the summers, but by Sept, I need to rest for a month…and for two weeks after Christmas. But in the summer and Christmas break he’s busy with other things. Right now, there’s a bit of outside house work to be done, but he’s got a bad cold (tested negative for Covid-19) so he doesn’t have a lot of energy to get the heck out of the house. He mostly leaves me alone, but before the lockdown he also taught karate 4 evenings and Saturday until mid afternoon….ie: most of the time I had the house to myself. But now that he’s home..my word thinking ability has definitely decreased, I’m hanging onto counters and furniture much more again, and even having a bath is exhausting again. My light and noise sensitivity (especially to tinny/screechy computer webinars that hubby must listen to for work) has ramped up dramatically.
It’s 1:30 pm and I haven’t been able keep my eyes open since I woke up…need a nap today. There’s only so many times I can say to him, with his bad cold, “now you know how I feel everyday.” He’s always been very good to me, but now he’s getting a better feel for what I’ve been going through for 5 years. I do realize now that I can’t pop out the grocery store, only 5 minutes away, that I too was doing too much driving before the lockdown. The last time we got groceries, a couple of weeks ago, hubby drove and that helped soooo much! Stay well everyone. We shall persevere.

]]> By: Jenny Hughes https://www.jumbledbrain.com/brain-injury-and-the-debilitating-impact-of-social-isolation/#comment-1552 Fri, 03 Apr 2020 14:03:13 +0000 https://www.jumbledbrain.com/?p=9127#comment-1552 Thank you for writing this, it’s so very true. People mostly only see or hear from us on our rare good days so they assume we’re like that all the time when we aren’t, then (as you say) we pay for going out and over-doing it, it’s like a big overdraft: we’ve used up more energy than we have so have to pay it back often for several days afterwards of feeling totally exhausted, wiped-out and in extra pain. Thank you for explaining how hard it can be for us to do things people take for granted (as we did before our brain injury) such as watching a movie, reading a book, cleaning and so on, for me it’s difficult to even get comfy to watch telly, let alone people telling us to do relaxation exercises or meditation = so hard when in constant pain even lying down and no position is comfortable. I do find that doing my art blocks out a lot of pain and worries until I stop & then realise I’ve done too much, still rubbish at pacing myself and can’t relax when I stop anyway! Yes, at the moment I’m feeling even more lonely and cut off than I did before. Well done you for writing all that you do – and so well.

]]> By: Michelle #jumbledbrain https://www.jumbledbrain.com/brain-injury-and-the-debilitating-impact-of-social-isolation/#comment-1545 Mon, 30 Mar 2020 15:07:45 +0000 https://www.jumbledbrain.com/?p=9127#comment-1545 In reply to Lydia.

Thanks Lydia. I’d like to think something good has got to come out of this situation.

]]> By: Lydia https://www.jumbledbrain.com/brain-injury-and-the-debilitating-impact-of-social-isolation/#comment-1544 Mon, 30 Mar 2020 13:18:07 +0000 https://www.jumbledbrain.com/?p=9127#comment-1544 This was a thought-provoking post. I hope that people do develop more empathy for you as a result of this pandemic and the social isolation we’re all doing.

]]> By: Michelle #jumbledbrain https://www.jumbledbrain.com/brain-injury-and-the-debilitating-impact-of-social-isolation/#comment-1539 Sun, 29 Mar 2020 02:21:47 +0000 https://www.jumbledbrain.com/?p=9127#comment-1539 In reply to Jean.

I guess it’s nice that they want to see you so much, but it does make it awkward when you have to turn things down and they don’t understand

]]> By: Jean https://www.jumbledbrain.com/brain-injury-and-the-debilitating-impact-of-social-isolation/#comment-1538 Sun, 29 Mar 2020 01:32:55 +0000 https://www.jumbledbrain.com/?p=9127#comment-1538 In reply to Michelle #jumbledbrain.

Same for me. When friends take me out for a day it takes me two to three days to recover. Folks don’t understand why I can’t go out two days in a row?

]]> By: Michelle #jumbledbrain https://www.jumbledbrain.com/brain-injury-and-the-debilitating-impact-of-social-isolation/#comment-1536 Sat, 28 Mar 2020 06:44:27 +0000 https://www.jumbledbrain.com/?p=9127#comment-1536 In reply to Dana rea Gray.

Dana you put it so well. Yes, it’s the same for me. When I do see friends I am exhausted for a few days afterwards.

]]> By: Dana rea Gray https://www.jumbledbrain.com/brain-injury-and-the-debilitating-impact-of-social-isolation/#comment-1535 Sat, 28 Mar 2020 05:19:54 +0000 https://www.jumbledbrain.com/?p=9127#comment-1535 At this time of isolation. It isn’t to much different from the life I have been living. I was seeing very few friends to try and make myself get out. Realizing this was good for me but at the same time exhausting. So then I need a day or two ~ to recouperate. I do realize there are times I must push myself and not give up. At the same time knowing I must get some rest in order to be healthy. #staystrong #nevergiveup #taketimetimetorrest #sayingnoisamustattimes.

]]> By: Michelle #jumbledbrain https://www.jumbledbrain.com/brain-injury-and-the-debilitating-impact-of-social-isolation/#comment-1531 Thu, 26 Mar 2020 20:32:19 +0000 https://www.jumbledbrain.com/?p=9127#comment-1531 In reply to Don.

I totally agree with you Don, just not being able to go to work and seeing friends when we want is only one part of what we go through. And when home technology can’t help because of your brain injury it’s a very different situation. I just hope this offers a chance for people to reflect and pick up the phone now to those who really need that social contact.

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