That’s an interesting observation that you get hungry when you’re brain has been overworked. It makes so much sense. I’m going to try to look out for that. Thanks.

Unsurprisingly I get far worse brain days when I haven’t slept well & have had really interrupted sleep – I wish I was allowed sleep tabs that work (as I used to get) because after a restful sleep I’m not totally exhausted when I wake up.

Trying to think & do paperwork is so difficult for me now, I’ve been made to fill forms in for almost 15 years (benefits+) and lots of other admin that before I found quite easy but now is too difficult – mainly because the systems & rules (e.g. insurance & TV, phone & internet and energy suppliers) are too complex and deceiving = they know that and want it like that because it’s good for their businesses. But IF companies created simple clear & honest contracts maybe they’d get more business?

Having mostly (all) bad brain days since my forced uprooting & move to a place I had never visited, didn’t choose or want & can’t make it fit me & can’t arrange it properly & can’t find/use my things – I’ve regressed SO much (& my short-term memory is worse) so everything is harder to do now and I cry most days because of that & the extra injuries (= more pain) from 6 weeks of packing all my art & materials & moving. I wish I could live in a safe place that I’ve chosen & that is adapted to me but only rich people or those who after injury can make a legal claim & win can get that – not people injured by the NHS as I was, I wish that would change.

That’s interesting that you eat more on a bad brain day. I’ve put on so much weight and I have noticed that I want to eat even when I’m not hungry. I hadn’t made the connection, but maybe that is happening when it’s a bad brain day.

I know people think that they are trying to show some empathy when they say they get tired too, but the brain fatigue we get isn’t like any tiredness or exhaustion I experienced before my brain injury.

It’s tough for people to get it when they haven’t experienced a brain injury for themselves. I think the bit that they often find it hard to get their heads round, is how 2 days are never the same. We can seem fine, and then we’re not.