Comments on: Fatigue. Wicked exhaustion backlash after brain injury.

By: Jenny Hughes

Jenny Hughes — Sat, 11 Apr 2020 10:44:12 +0000

Well said. I describe it as thinking through treacle. And after almost 15 years I’m still exhausted every morning and most of the time, better than at the start though when I had to go lie down for 2 hours after just doing the washing up – my son said I was lazy because I lay on the sofa so much, but that wasn’t his fault he didn’t understand and I couldn’t explain, that hurt though but I kept quiet and did my best to hide how I was. I wish doctors had told the truth about how they’d injured me then my son (& friends/family) would have had it all explained too, sadly even now everyone expects far too much from me and still refuse to accept there are some things I really can’t do and get angry with me with makes me feel really terrible. Before my brain injury I had no idea what this extreme fatigue is like (& how difficult some daily living tasks are, especially when alone & feeling hopeless & overwhelmed) so I understand that others don’t, thanks for helping to tell people what we have to deal with.

By: michelle.munt@yahoo.co.uk

michelle.munt@yahoo.co.uk — Fri, 17 Aug 2018 19:03:18 +0000

In reply to Jan. I love that description Jan! Just a shame it doesn't taste so good as peanut butter. lol

By: Jan

Jan — Fri, 17 Aug 2018 17:05:16 +0000

That is so true…days to recover….If I try to do something out of the minimal ordinary…It feels like I am wading through a field of peanut butter!…It’s so very hard to move
And DO…

By: michelle.munt@yahoo.co.uk

michelle.munt@yahoo.co.uk — Fri, 03 Aug 2018 11:52:05 +0000

In reply to Zoe. And I'm sure you put all your available energy into your children, and sacrifice yourself for them. Sending you hugs Zoe.

By: Zoe

Zoe — Fri, 03 Aug 2018 09:56:40 +0000

Never having anything to say is a killer for me, living silently what can I say when nothing is there, living with an unseen disability feeling judged coz I look ok but I am not living with this since the age of 29 I am 36 now and a single parent but still battling just to try make things ok for my 3 children. My brain injury caused by ruptured anryisum .

By: michelle.munt@yahoo.co.uk

michelle.munt@yahoo.co.uk — Fri, 27 Jan 2017 21:39:24 +0000

In reply to helentastic67. I'm sorry Helen. I do think I have improved on this issue, albeit not as much as I would like. I do struggle more if I do something out of the ordinary it takes days for me to recover.

By: helentastic67

helentastic67 — Fri, 27 Jan 2017 12:16:58 +0000

What do you mean, most days? Every day! I wake up knackered, I go to bed knackered. And if I sneak a kip in between. And it’s not likely to end…..is it?

By: michelle.munt@yahoo.co.uk

michelle.munt@yahoo.co.uk — Thu, 26 Jan 2017 21:19:38 +0000

In reply to Joanne Wood. I used to be exactly the same. I was always worried that with my slurred speech and lack of balance people would think I was drunk. Silly really, it doesn't matter what others assume.

By: Joanne Wood

Joanne Wood — Thu, 26 Jan 2017 21:12:20 +0000

What a brilliant way of explaining how fatigue effects us. You are spot on, for me it’s the same, usually it’s 20 minutes into an activity that I think ‘ok my brain is coping, I think I will be ok’ or ‘ it’s a massive fail, get me home, speech is slurred, my walk becomes a stagger’ but everyday is different. I am finding the more stimulation, noise, brightness, smells, busy places with music blaring, then the fatigue just appears and catches me out, I go down hill fast. The only way to recover is rest. At first I felt embarrassed when people saw me in the staggering, stumbling over words state, but now I carefully plan where I go and what I do. The safety in your own home means that you can leave a task half done, or just climb on the sofa for a bit of restoration. The knock on effect drives me mad though, a stressful stimulating hour can give me days of chronic fatigue. It’s pants! But the really good thing, slowly, slowly I mean really slowly the brain is rerouting the connections. Aren’t our poorly brains clever!

By: michelle.munt@yahoo.co.uk

michelle.munt@yahoo.co.uk — Thu, 26 Jan 2017 09:57:25 +0000

In reply to Sue O'Neill. People mean well when they try to relate to our struggles as they are trying to say don't worry. But they don't realise minimising it like that doesn't help.