Comments on: How I explain what living with a brain injury feels like

By: Michelle #jumbledbrain

Michelle #jumbledbrain — Fri, 09 Feb 2024 16:09:28 +0000

In reply to Michele Burgess. I'm glad that you find my posts helpful Michele

By: Michele Burgess

Michele Burgess — Thu, 25 Jan 2024 04:08:50 +0000

I am eight years into my brain injury, and feel like I have walked in a messy room for something but don’t know what I need when I get there. So I wind up cleaning up stuff hoping that I will know what I came into that room for. It is still confusing and makes me feel truly not alone on this journey. Thank you for being here.

By: Michelle #jumbledbrain

Michelle #jumbledbrain — Thu, 23 Sep 2021 20:45:47 +0000

In reply to Mark Fitzgerald. Patience is definitely important. The cognitive issues do seem be the ones that many find difficult to deal with.

By: Mark Fitzgerald

Mark Fitzgerald — Thu, 23 Sep 2021 20:14:53 +0000

A year ago, I hit my head into the pavement pretty hard with a helmet on. After a little bit of surgery on my fractured skull, I appeared to look fine but it’s what happened behind the scenes that only those close to me will understand. CAT scans are standard but after my physiatrist requested an MRI, they discovered diffuse axon injury.
I’m hope that the “hardware” is well on the way to being healed but the memory, mental fatigue and anxiety seem like they are not getting better. Brain injury recovery requires a LOT of patience!

By: Michelle #jumbledbrain

Michelle #jumbledbrain — Wed, 22 Sep 2021 18:35:45 +0000

In reply to Carl Jackson. I hope your friends and family understand that you can't help how you are when you have these episodes.

By: Carl Jackson

Carl Jackson — Wed, 22 Sep 2021 18:17:43 +0000

On my “ normal” days I’m like everyone else. On other days:
I feel like I just got off a rollercoaster
I feel like I’m going on 2 hours sleep
I feel confused and slow
I feel rude because I’m quiet and not talking because of above feelings but I look normal so no one knows
Sounds like everyone is yelling when they’re talking in normal tone
I’m trying to understand every conversation going on around me
I wish I could disappear because I feel out of place

By: Michelle #jumbledbrain

Michelle #jumbledbrain — Wed, 22 Sep 2021 16:45:08 +0000

In reply to Dorothy Noecker. You're not alone Dorothy :)

By: Michelle #jumbledbrain

Michelle #jumbledbrain — Wed, 22 Sep 2021 16:44:30 +0000

In reply to Dave Fisher. That's a good description. Yes I like that one.

By: Dorothy Noecker

Dorothy Noecker — Wed, 22 Sep 2021 12:31:24 +0000

Very helpful reading what other TBI people have gone through. Helps me make it through another day.

By: Dave Fisher

Dave Fisher — Wed, 22 Sep 2021 06:42:11 +0000

The best description I can come up with would be, my “cursor” is often missing from my mental computer screen.

The icons are there, you just have no way to open them.

My short term memory bank is written on a classroom chalkboard and that damn janitor erases and cleans it
often and thoroughly. I still can’t figure out who gave him a pass key…