Comments on: It’s tough being patient when your brain injury makes you dizzy.

By: Michelle #jumbledbrain

Michelle #jumbledbrain — Sat, 20 Aug 2022 18:10:14 +0000

In reply to Lori A Taylor. Please don't be disheartened, everyone's experience is different. And it's important that we share our experiences so we can learn from each other. Whilst some people might continue to have a particular symptom they are often the ones who develop good coping strategies for it which the rest of us can learn from.

By: Lori A Taylor

Lori A Taylor — Sat, 20 Aug 2022 02:02:23 +0000

The thing that really brings on dizziness for me is a change in the weather, the barometric pressure! From a hot sunny day to a cooler overcast or rainy day and you’ll find me in bed! Sometimes I can hardly stand up. When the seasons change it takes me a couple weeks to adjust. I find it somewhat discouraging as I read these replies from people who are 5, 10, 20 years into their TBI and still have these issues….

By: michelle.munt@yahoo.co.uk

michelle.munt@yahoo.co.uk — Fri, 06 Jul 2018 17:58:22 +0000

In reply to Joanne Irving. Valuable advice there, thank you for sharing your story. And yes continue to worth on showing yourself kindness.

By: Joanne Irving

Joanne Irving — Fri, 06 Jul 2018 14:48:37 +0000

In reply to Maxine. I'm so sorry for you not being able to do something so important to you.We have such big changes to make in our lives. Learning to know when we need to stay home is so helpful. :-)

By: Joanne Irving

Joanne Irving — Fri, 06 Jul 2018 14:40:08 +0000

As the years have gone by, it seems the strange feelings I have always had in my head even before the meningioma surgery, keep changing and unfortunately get worse.
I have so many names for the feeling of “dizziness” and what it causes, even though my otoneurologist told me you are NOT dizzy, you are faint. Okay, I am faint but my head spins, i feel like i am going to fall and sometimes i might collapse.

Well…..after the last bad collapse in a CVS while on vacation in Florida, I’ve learned a few little tricks to help with another diagnosis from yet another doctor. This one is near syncope and syncope, sometimes a normal sequalae to meningioma surgery she said

I find that i must keep sipping water all day long. Gulping isn’t necessary but sipping is. We can’t allow our blood sugar to drop either because although our head trauma and symptoms are neurological; the symptoms of dehydration and low blood sugar will only make us worse. Everyone is susceptible to those.

About a year ago, at a concert my sister was singing in, the minute the orchestra started to play Hayden, so loud, i instantly had a small seizure. The noise overwhelmed my brain and caused uncontrollable jerking and a “sense” of collapse. Once i was out of that mode, my friend helped me out of the concert and now i know i can’t go again unless I have good ear plugs and i check to see who the musician is.

Bright lights, noise, too much talking and background chatter, all cause me to feel a sense of fatigue and faintness until i lose all my strength and need to carefully find a quiet spot to sit alone.
How do i feel about this 25 years later?Awful. Sometimes like a jerk. I still have trouble accepting myself and my reality that i haven’t been able to self heal this one thing. And we all know how long the list is of our symptoms. Yes, I am working on loving kindness toward myself. After all, i didn’t ask for the tumor, but i got it for a reason and learning to live each new year with different events and setbacks, might be my lesson. I do not know. I just try to live one day at a time and to smile.

By: michelle.munt@yahoo.co.uk

michelle.munt@yahoo.co.uk — Wed, 04 Jul 2018 19:50:48 +0000

In reply to Maxine. I’m sorry you can’t attend church because I know how important that is to you. But right now you have to protect yourself, and I’m sure the minister and the congregation understand that.

By: michelle.munt@yahoo.co.uk

michelle.munt@yahoo.co.uk — Wed, 04 Jul 2018 19:48:11 +0000

In reply to deborah alvarez. Yes you definitely need to give yourself a pat on the back because you have overcome some serious hurdles there ?

By: deborah alvarez

deborah alvarez — Wed, 04 Jul 2018 18:56:13 +0000

the only thing i am able to do is remove myself from the situation and sit on the ground some where out of the way or just not go anywhere. i must have made strides 12 to 13 years ago because i work, shop, and ventured on long distances visits on a few times. i stick to a routine and for the traveling, i have my anxiety pills and always try to keep myself at a distance from groups.

By: Maxine

Maxine — Wed, 04 Jul 2018 18:38:30 +0000

To make my TBI much more fun, I have spells of labrynthitis which can go on for a few months. I’m struggling with one now. Chaotic environments increase this problem significantly. I have had to quit going to church as I can’t handle the minister on loud speaker, the crying babies, the over excited children and the general overwhelming noise. Sometimes I can cope with this type of environment if I wear those tiny ear plugs. I can get the general idea of conversations but it muffles the din. I generally tend to avoid large noisy groups wherever possible and don’t go if I’m tired.