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		<title>Living with invisible disability, brain injury</title>
		<link>https://www.jumbledbrain.com/brain-injury-the-invisible-disability/</link>
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		<dc:creator><![CDATA[Michelle #jumbledbrain]]></dc:creator>
		<pubDate>Thu, 06 Oct 2016 12:12:54 +0000</pubDate>
				<category><![CDATA[Brain injury, TBI, ABI]]></category>
		<category><![CDATA[assumptions]]></category>
		<category><![CDATA[communication]]></category>
		<category><![CDATA[disability]]></category>
		<category><![CDATA[expectations]]></category>
		<category><![CDATA[invisible disability]]></category>
		<category><![CDATA[labelled]]></category>
		<category><![CDATA[misjudged]]></category>
		<category><![CDATA[needs]]></category>
		<category><![CDATA[recognise]]></category>
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					<description><![CDATA[<p>When I&#8217;m going about my normal day, (who am I kidding, with a brain injury there is no such thing as a normal day) I have know idea if the people who I walk past have a brain injury too. It is the invisible disability. But that can make people&#8217;s expectations of you too high. [&#8230;]</p>
<p>The post <a href="https://www.jumbledbrain.com/brain-injury-the-invisible-disability/">Living with invisible disability, brain injury</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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															<img fetchpriority="high" decoding="async" data-attachment-id="14882" data-permalink="https://www.jumbledbrain.com/brain-injury-the-invisible-disability/living-with-an-invisible-disability-brain-injury-1/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-an-invisible-disability-brain-injury-1.png?fit=1600%2C900&amp;ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-title="Living with an invisible disability, brain injury (1)" data-image-description="" data-image-caption="" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-an-invisible-disability-brain-injury-1.png?fit=580%2C326&amp;ssl=1" width="1600" height="900" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-an-invisible-disability-brain-injury-1.png?fit=1600%2C900&amp;ssl=1" class="attachment-full size-full wp-image-14882" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-an-invisible-disability-brain-injury-1.png?w=1600&amp;ssl=1 1600w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-an-invisible-disability-brain-injury-1.png?resize=300%2C169&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-an-invisible-disability-brain-injury-1.png?resize=1024%2C576&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-an-invisible-disability-brain-injury-1.png?resize=768%2C432&amp;ssl=1 768w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-an-invisible-disability-brain-injury-1.png?resize=1536%2C864&amp;ssl=1 1536w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-an-invisible-disability-brain-injury-1.png?resize=1200%2C675&amp;ssl=1 1200w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="14882" data-permalink="https://www.jumbledbrain.com/brain-injury-the-invisible-disability/living-with-an-invisible-disability-brain-injury-1/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-an-invisible-disability-brain-injury-1.png?fit=1600%2C900&amp;ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-title="Living with an invisible disability, brain injury (1)" data-image-description="" data-image-caption="" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-an-invisible-disability-brain-injury-1.png?fit=580%2C326&amp;ssl=1" />															</div>
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									<p><span style="color: #000000;">When I&#8217;m going about my normal day, (who am I kidding, with a brain injury there is no such thing as a <em>normal</em> day) I have know idea if the people who I walk past have a brain injury too. It is the invisible disability. But that can make people&#8217;s expectations of you too high.</span></p><h4><span style="color: #003300;">I don&#8217;t know if it&#8217;s because modern life is so fast, but there seems to be an increasing habit, of people not bothering to use full sentences. </span></h4><p><span style="color: #000000;">That&#8217;s fine in a operating theatre when the surgeon says &#8220;scalpel&#8221;. It&#8217;s easy to guess they are asking the assistant to pass it. It might not be polite, but when speed could mean life or death you can forgive dropping the courtesies. In the real world, putting the word &#8220;please&#8221; at the end might soften the blow, but it doesn&#8217;t add any more context.</span></p><h4><span style="color: #003300;">&#8220;<em>Phone please</em>&#8220;. Do you want me to pass you the phone, or make a phone call.</span></h4><p><span style="color: #000000;">People seem to assume that the rest of the words are wasted. They think you can fill in the gaps by reading the situation. <em>Well I&#8217;ve got news for you, sometimes I can&#8217;t!</em></span></p><div style="display: none;"><img decoding="async" data-attachment-id="2845" data-permalink="https://www.jumbledbrain.com/brain-injury-the-invisible-disability/living-with-invisible-disability-brain-injury/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-Invisible-disability-Brain-Injury.png?fit=800%2C1200&amp;ssl=1" data-orig-size="800,1200" data-comments-opened="1" data-image-title="Living with Invisible disability &amp;#8211; Brain Injury" data-image-description="" data-image-caption="" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-Invisible-disability-Brain-Injury.png?fit=580%2C870&amp;ssl=1" data-recalc-dims="1" class="aligncenter size-full wp-image-2845" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-Invisible-disability-Brain-Injury.png?resize=580%2C870&#038;ssl=1" alt="I look fine, but I have an invisible disability. It's there, &amp; it affects me in lots of ways. But if I can walk, am I allowed to use the disabled toilet?" width="580" height="870" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-Invisible-disability-Brain-Injury.png?w=800&amp;ssl=1 800w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-Invisible-disability-Brain-Injury.png?resize=200%2C300&amp;ssl=1 200w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-Invisible-disability-Brain-Injury.png?resize=768%2C1152&amp;ssl=1 768w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-Invisible-disability-Brain-Injury.png?resize=683%2C1024&amp;ssl=1 683w" sizes="(max-width: 580px) 100vw, 580px" /></div>								</div>
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															<img decoding="async" data-attachment-id="11273" data-permalink="https://www.jumbledbrain.com/brain-injury-the-invisible-disability/living-with-invisible-disability-brain-injury-2/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-invisible-disability-brain-injury-.png?fit=1080%2C1080&amp;ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-title="Living with invisible disability, brain injury" data-image-description="" data-image-caption="" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-invisible-disability-brain-injury-.png?fit=580%2C580&amp;ssl=1" width="580" height="580" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-invisible-disability-brain-injury-.png?fit=580%2C580&amp;ssl=1" class="attachment-medium_large size-medium_large wp-image-11273" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-invisible-disability-brain-injury-.png?w=1080&amp;ssl=1 1080w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-invisible-disability-brain-injury-.png?resize=300%2C300&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-invisible-disability-brain-injury-.png?resize=1024%2C1024&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-invisible-disability-brain-injury-.png?resize=150%2C150&amp;ssl=1 150w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-invisible-disability-brain-injury-.png?resize=768%2C768&amp;ssl=1 768w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="11273" data-permalink="https://www.jumbledbrain.com/brain-injury-the-invisible-disability/living-with-invisible-disability-brain-injury-2/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-invisible-disability-brain-injury-.png?fit=1080%2C1080&amp;ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-title="Living with invisible disability, brain injury" data-image-description="" data-image-caption="" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Living-with-invisible-disability-brain-injury-.png?fit=580%2C580&amp;ssl=1" />															</div>
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									<h4><span style="color: #003300;">Sometimes we might not want to always talk about it and be forever explaining ourselves.</span></h4><p><span style="color: #000000;">One day I really had to go to the toilet urgently as my bladder wouldn&#8217;t give me much notice. It was a hospital (which I find hard to navigate at the best of times.) There was a separate disabled toilet, but I couldn&#8217;t see where the general ladies toilets were. So feeling like there wasn&#8217;t time and therefore leaving me no choice, I used the disabled toilet.</span></p><p><span style="color: #000000;">I know these are designed for wheelchair users. I wouldn&#8217;t normally use one as they should be kept free for them. So I was deeply embarrassed when, to my horror, as I exited there was a wheelchair user waiting. The <em>knowing</em> look I got from them made me die inside, so I just shyly smiled and held the door open for them. I felt like a criminal. If they knew my problem I&#8217;m sure they wouldn&#8217;t have taken issue with me using the disabled toilet. But as I can walk (or limp actually) on my own two feet, I was judged as being thoughtless and/or lazy. I have an invisible disability, my brain and bladder, you just can&#8217;t see them.</span></p><p><span style="color: #000000;">If another disabled person can look down on me, (so to speak, don&#8217;t write in pointing out that when I&#8217;m standing a person sitting down has to look up at me) what must the general public think? But my issues are legitimate and just as important to recognise. And I&#8217;m still trying to accept how things are different for me now. Believe me, there&#8217;s no one harder on me than myself. I didn&#8217;t ask to have an invisible disability. Please just cut me some slack.</span></p>								</div>
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															<img loading="lazy" decoding="async" data-attachment-id="395" data-permalink="https://www.jumbledbrain.com/brain-injury-the-invisible-disability/doesnt-look-like-im-sick-well-you-dont-look-stupid-looks-can-be-deceiving/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Doesnt-look-like-Im-sick.-Well-you-dont-look-stupid.-Looks-can-be-deceiving.jpg?fit=720%2C450&amp;ssl=1" data-orig-size="720,450" data-comments-opened="1" data-image-title="doesnt-look-like-im-sick-well-you-dont-look-stupid-looks-can-be-deceiving" data-image-description="&lt;p&gt;doesnt-look-like-im-sick-well-you-dont-look-stupid-looks-can-be-deceiving. Cat with intense eyes. Angry&lt;/p&gt;
" data-image-caption="" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Doesnt-look-like-Im-sick.-Well-you-dont-look-stupid.-Looks-can-be-deceiving.jpg?fit=580%2C363&amp;ssl=1" width="720" height="450" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Doesnt-look-like-Im-sick.-Well-you-dont-look-stupid.-Looks-can-be-deceiving.jpg?fit=720%2C450&amp;ssl=1" class="attachment-full size-full wp-image-395" alt="doesnt-look-like-im-sick-well-you-dont-look-stupid-looks-can-be-deceiving" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Doesnt-look-like-Im-sick.-Well-you-dont-look-stupid.-Looks-can-be-deceiving.jpg?w=720&amp;ssl=1 720w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Doesnt-look-like-Im-sick.-Well-you-dont-look-stupid.-Looks-can-be-deceiving.jpg?resize=300%2C188&amp;ssl=1 300w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="395" data-permalink="https://www.jumbledbrain.com/brain-injury-the-invisible-disability/doesnt-look-like-im-sick-well-you-dont-look-stupid-looks-can-be-deceiving/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Doesnt-look-like-Im-sick.-Well-you-dont-look-stupid.-Looks-can-be-deceiving.jpg?fit=720%2C450&amp;ssl=1" data-orig-size="720,450" data-comments-opened="1" data-image-title="doesnt-look-like-im-sick-well-you-dont-look-stupid-looks-can-be-deceiving" data-image-description="&lt;p&gt;doesnt-look-like-im-sick-well-you-dont-look-stupid-looks-can-be-deceiving. Cat with intense eyes. Angry&lt;/p&gt;
" data-image-caption="" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2016/10/Doesnt-look-like-Im-sick.-Well-you-dont-look-stupid.-Looks-can-be-deceiving.jpg?fit=580%2C363&amp;ssl=1" />															</div>
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									<p><span style="color: #000000;">Just because I smile, it doesn&#8217;t mean I&#8217;m fine. Even if you ask me &#8220;How are you?&#8221;, I&#8217;ll probably say &#8220;Good thank you, and you?&#8221;, as often people don&#8217;t really want to hear the real story.</span></p><p><span style="color: #000000;">I don&#8217;t want to wear a badge as my brain injury doesn&#8217;t define me. But I wish people were a bit more open minded as to what a disability is.</span></p>								</div>
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									<p>Other articles you might like:</p><ul><li><a href="https://www.jumbledbrain.com/2017/07/24/drunk-or-brain-injury/">Drunk or brain injury? Can you tell the difference?</a></li><li><a href="https://www.jumbledbrain.com/2017/07/17/shy-sociable-brain-injury/">Breaking the ceiling of shyness to be sociable after brain injury.</a></li><li><a href="https://www.jumbledbrain.com/2016/10/08/is-my-brain-injury-making-me-paranoid/">Is my brain injury making me paranoid?</a></li><li><a href="https://www.jumbledbrain.com/2017/05/08/disabled-box-brain-injury/">Do I tick the disabled box or not? Brain injury is more complicated than that.</a></li><li><a href="https://www.jumbledbrain.com/2017/08/14/indecision-brain-injury/">5 steps to end time consuming indecision of brain injury.</a></li></ul>								</div>
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					<h3 class="elementor-heading-title elementor-size-default">Have you ever felt misjudged? How do you deal with these situations?How does your invisible divisibility affect you?</h3>				</div>
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		<p>The post <a href="https://www.jumbledbrain.com/brain-injury-the-invisible-disability/">Living with invisible disability, brain injury</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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