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		<title>How ego makes accepting support after a brain injury challenging</title>
		<link>https://www.jumbledbrain.com/how-ego-makes-accepting-support-after-a-brain-injury-challenging/</link>
					<comments>https://www.jumbledbrain.com/how-ego-makes-accepting-support-after-a-brain-injury-challenging/#comments</comments>
		
		<dc:creator><![CDATA[Michelle #jumbledbrain]]></dc:creator>
		<pubDate>Thu, 08 Jul 2021 19:20:22 +0000</pubDate>
				<category><![CDATA[Brain injury, TBI, ABI]]></category>
		<category><![CDATA[acceptance]]></category>
		<category><![CDATA[brain injury]]></category>
		<category><![CDATA[brain injury survivor]]></category>
		<category><![CDATA[denial]]></category>
		<category><![CDATA[ego]]></category>
		<category><![CDATA[hearing loss]]></category>
		<category><![CDATA[stubborn]]></category>
		<category><![CDATA[support]]></category>
		<category><![CDATA[tinnitus]]></category>
		<guid isPermaLink="false">https://www.jumbledbrain.com/?p=13341</guid>

					<description><![CDATA[<p>There&#8217;s so many things about a brain injury which are difficult to deal with, but probably the most fundamental is accepting that you can&#8217;t do things as easily as you did before. We often can&#8217;t even recognise what we&#8217;re struggling with to begin with until we look back at an event with hindsight.  I&#8217;ve mentioned [&#8230;]</p>
<p>The post <a href="https://www.jumbledbrain.com/how-ego-makes-accepting-support-after-a-brain-injury-challenging/">How ego makes accepting support after a brain injury challenging</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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									<p>There&#8217;s so many things about a brain injury which are difficult to deal with, but probably the most fundamental is accepting that you can&#8217;t do things as easily as you did before. We often can&#8217;t even recognise what we&#8217;re struggling with to begin with until we look back at an event with hindsight.  I&#8217;ve mentioned before in <a href="https://www.jumbledbrain.com/2017/08/29/lack-of-insight-brain-injury/">Lack of insight when brain injury strikes</a> how this can affect me in strange ways, and quite frankly, can leave me feeling a little ashamed at my abnormal behaviour. Maybe that&#8217;s why I sometimes find it hard to accept that I need help with certain things because it means I have to acknowledge my problems.</p><h4>Accepting support is so much harder than it sounds.</h4><p>Actually I thought I&#8217;d become much better at accepting help, and I guess I had, but there was one more thing that required me to swallow my ego to deal with. Even as I sit here now, writing this post, I don&#8217;t feel comfortable opening up about what I&#8217;m about to admit. Not because it&#8217;s anything to be ashamed of, but because I have to own up to my disability which I find distressing. Previously in <a href="https://www.jumbledbrain.com/2016/10/26/tinnitus-loathsome-bells-brain-injury/">Tinnitus, the loathsome bells of brain injury </a>I&#8217;ve told you about some of my hearing problems. Now the eagle-eyed amongst you with have spotted that I wrote that article almost 5 years ago. (Oh my, have I really been prattling on about brain injury for that long? Thank you for continuing to put up with me all this time.) Even though I have been living been this issue for a long time now, I have only just put serious effort into accessing a long term solution. Why? Because I knew I had some hearing loss and I was frightened that I might be told hearing aids would be the only answer. I didn&#8217;t want to have to face that because I didn&#8217;t want the world to see them and know I have a disability. The irony of that when I&#8217;m have complained about living with an invisible disability for so long isn&#8217;t lost on me.</p><p>I had been mishearing what people were saying and constantly feeling like I needed to either turn the TV up or have subtitles on to make sure I followed the dialogue properly. So finally I had an appointment with a private audiologist who confirmed my fears. I have moderate hearing loss which will be at least contributing, if not the primary cause of my Tinnitus. I have no doubt that my brain injury has exacerbated this and left me in this position. Although the news did not surprise me, I was deflated when he told me I should have double hearing aids. My left is worse (as is my leg, arm and well, everything following my brain injury) but I still warranted assistance for both ears.</p><h4>I&#8217;d been trying to avoid having a device to support my hearing because I didn&#8217;t want people to SEE me as a disabled person. </h4><p>As I&#8217;m in my late 30&#8217;s it&#8217;s not considered usual to have this level of hearing loss. The hearing aids the NHS hand out to patients here in the UK are large and very noticeable. My fear was that they would be uncomfortable and that people would see a &#8220;deaf woman&#8221; rather than me. That&#8217;s why I chose the private route. I know that this isn&#8217;t an option that many can consider, but honestly I would have just continued to tell myself that I could deal with it and try to ignore the problem. Fortunately, at a price, they were able to offer me hearing aids which are small and unless you look very hard you would never know were there. I don&#8217;t know why, but it still makes me feel less of a person which is stupid because I hold no judgement of the deaf community at all, so why am I any different? I guess the ego has a habit of holding ourselves to a different standard to that of which we have for others. Rationally, I realise that how well a person can hear holds on bearing on everything else about who that person is, thus it&#8217;s irrelevant to everyone else. But my ego and I need to get comfortable with our new reality. It&#8217;s been less than 2 months since I started using the hearing aids, and I&#8217;m slowly getting there. I haven&#8217;t told all my friends about them yet, for some crazy reason writing it here first feels like the step I need to do. Once I&#8217;ve put it out there to the world I don&#8217;t have to talk about it anymore. Either people will read it so everyone has the opportunity to learn about it at the same time, or they&#8217;ll notice them and bring it up. This way I don&#8217;t have to keep talking about it. That&#8217;s something about me that I have some to recognise, it takes me a lot of time to get to the point where I feel able to have open conversations about things which I&#8217;m feeling awkward about. Like when my car accident and subsequent brain injury happened: it was many many months before I told people what had happened and what I was going through.</p>								</div>
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															<img decoding="async" data-attachment-id="13354" data-permalink="https://www.jumbledbrain.com/how-ego-makes-accepting-support-after-a-brain-injury-challenging/how-ego-makes-accepting-support-after-a-brain-injury-challenging-2/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2021/07/How-ego-makes-Accepting-support-after-a-brain-injury-challenging-.png?fit=1080%2C1080&amp;ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="How ego makes Accepting support after a brain injury challenging" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2021/07/How-ego-makes-Accepting-support-after-a-brain-injury-challenging-.png?fit=300%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2021/07/How-ego-makes-Accepting-support-after-a-brain-injury-challenging-.png?fit=580%2C580&amp;ssl=1" width="580" height="580" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2021/07/How-ego-makes-Accepting-support-after-a-brain-injury-challenging-.png?fit=580%2C580&amp;ssl=1" class="attachment-medium_large size-medium_large wp-image-13354" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2021/07/How-ego-makes-Accepting-support-after-a-brain-injury-challenging-.png?w=1080&amp;ssl=1 1080w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2021/07/How-ego-makes-Accepting-support-after-a-brain-injury-challenging-.png?resize=300%2C300&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2021/07/How-ego-makes-Accepting-support-after-a-brain-injury-challenging-.png?resize=1024%2C1024&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2021/07/How-ego-makes-Accepting-support-after-a-brain-injury-challenging-.png?resize=150%2C150&amp;ssl=1 150w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2021/07/How-ego-makes-Accepting-support-after-a-brain-injury-challenging-.png?resize=768%2C768&amp;ssl=1 768w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="13354" data-permalink="https://www.jumbledbrain.com/how-ego-makes-accepting-support-after-a-brain-injury-challenging/how-ego-makes-accepting-support-after-a-brain-injury-challenging-2/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2021/07/How-ego-makes-Accepting-support-after-a-brain-injury-challenging-.png?fit=1080%2C1080&amp;ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="How ego makes Accepting support after a brain injury challenging" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2021/07/How-ego-makes-Accepting-support-after-a-brain-injury-challenging-.png?fit=300%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2021/07/How-ego-makes-Accepting-support-after-a-brain-injury-challenging-.png?fit=580%2C580&amp;ssl=1" />															</div>
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									<p>I&#8217;m telling you this because I think it&#8217;s important to explain to people how it&#8217;s not always easy to accept what might appear to them to be a simple solution to the problem. It&#8217;s not that we feel the need to carry on like we&#8217;re some kind of martyr, it&#8217;s that we need to be psychologically and emotionally ready to acknowledge what that means for us. I&#8217;m not saying we&#8217;re overly egotistically, but human nature is such that we need time to feel ready to welcome the change.</p><p>Other articles you may like:</p><ul><li><a href="https://www.jumbledbrain.com/2020/01/25/guest-post-hope-clark-on-my-new-normal-following-her-brain-injury/">Guest post: Hope Clark on &#8220;My new normal&#8221; following her brain injury</a></li><li><a href="https://www.jumbledbrain.com/2017/01/06/mourning-me-brain-injury/">Mourning me after a brain injury &amp; finding a new calling</a></li><li><a href="https://www.jumbledbrain.com/2021/03/30/sudden-brain-injury-uncharted-waters/">How a sudden brain injury is like entering uncharted waters</a></li><li><a href="https://www.jumbledbrain.com/2021/05/20/why-youre-wrong-if-you-brand-a-brain-injury-survivor-as-toxic/">Why you&#8217;re wrong if you brand a brain injury survivor as toxic</a></li></ul>								</div>
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					<h2 class="elementor-heading-title elementor-size-default">Were there times that you found it hard to accept the support that was available following your brain injury?
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		<p>The post <a href="https://www.jumbledbrain.com/how-ego-makes-accepting-support-after-a-brain-injury-challenging/">How ego makes accepting support after a brain injury challenging</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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			<slash:comments>4</slash:comments>
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">13341</post-id>	</item>
		<item>
		<title>Traumatic Brain Injury: understanding the trauma by Dr Rob Tennant</title>
		<link>https://www.jumbledbrain.com/traumatic-brain-injury-understanding-the-trauma-by-dr-rob-tennant/</link>
					<comments>https://www.jumbledbrain.com/traumatic-brain-injury-understanding-the-trauma-by-dr-rob-tennant/#respond</comments>
		
		<dc:creator><![CDATA[Michelle #jumbledbrain]]></dc:creator>
		<pubDate>Mon, 16 Mar 2020 17:53:47 +0000</pubDate>
				<category><![CDATA[Brain injury, TBI, ABI]]></category>
		<category><![CDATA[assumptions]]></category>
		<category><![CDATA[expectations]]></category>
		<category><![CDATA[family]]></category>
		<category><![CDATA[overlooked]]></category>
		<category><![CDATA[people]]></category>
		<category><![CDATA[priorities]]></category>
		<category><![CDATA[relationships]]></category>
		<category><![CDATA[support]]></category>
		<category><![CDATA[the trauma]]></category>
		<category><![CDATA[trauma]]></category>
		<category><![CDATA[traumatic brain injury]]></category>
		<guid isPermaLink="false">https://www.jumbledbrain.com/?p=9104</guid>

					<description><![CDATA[<p>Dr Tennant was not alone in the car when he sustained his traumatic brain injury. His injuries were not as obvious as those of his father’s and that impacted the triage process that night and followed through his long recovery. It is not uncommon in situations where more than one family member is injured for [&#8230;]</p>
<p>The post <a href="https://www.jumbledbrain.com/traumatic-brain-injury-understanding-the-trauma-by-dr-rob-tennant/">Traumatic Brain Injury: understanding the trauma by Dr Rob Tennant</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
]]></description>
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									<p>Dr Tennant was not alone in the car when he sustained his traumatic brain injury. His injuries were not as obvious as those of his father’s and that impacted the triage process that night and followed through his long recovery. It is not uncommon in situations where more than one family member is injured for the person with the least immediate symptoms to be underserved by medical practitioners and family. He believes that such abandonment results from the confusion to the family structure caused by multiple members experiencing such serious trauma simultaneously. Once the perceptions of the hierarchy of the trauma have been codified within the family, it can reduce the treatment outcomes for the victims with the least perceived injuries.</p>								</div>
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															<img loading="lazy" decoding="async" data-attachment-id="9107" data-permalink="https://www.jumbledbrain.com/traumatic-brain-injury-understanding-the-trauma-by-dr-rob-tennant/img_1838/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2020/03/IMG_1838.jpg?fit=929%2C1200&amp;ssl=1" data-orig-size="929,1200" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;2.2&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;iPhone XS Max&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;1573201670&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;2.87&quot;,&quot;iso&quot;:&quot;500&quot;,&quot;shutter_speed&quot;:&quot;0.041666666666667&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="IMG_1838" data-image-description="&lt;p&gt;Dr Rob Tennant&lt;/p&gt;
" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2020/03/IMG_1838.jpg?fit=232%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2020/03/IMG_1838.jpg?fit=580%2C749&amp;ssl=1" width="580" height="749" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2020/03/IMG_1838.jpg?fit=580%2C749&amp;ssl=1" class="attachment-medium_large size-medium_large wp-image-9107" alt="Understanding the trauma of TBI" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2020/03/IMG_1838.jpg?w=929&amp;ssl=1 929w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2020/03/IMG_1838.jpg?resize=232%2C300&amp;ssl=1 232w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2020/03/IMG_1838.jpg?resize=793%2C1024&amp;ssl=1 793w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2020/03/IMG_1838.jpg?resize=768%2C992&amp;ssl=1 768w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="9107" data-permalink="https://www.jumbledbrain.com/traumatic-brain-injury-understanding-the-trauma-by-dr-rob-tennant/img_1838/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2020/03/IMG_1838.jpg?fit=929%2C1200&amp;ssl=1" data-orig-size="929,1200" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;2.2&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;iPhone XS Max&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;1573201670&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;2.87&quot;,&quot;iso&quot;:&quot;500&quot;,&quot;shutter_speed&quot;:&quot;0.041666666666667&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="IMG_1838" data-image-description="&lt;p&gt;Dr Rob Tennant&lt;/p&gt;
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									<p>Everyone experiences a TBI differently. Everyone has their own story to tell. I hope this essay provides insight into some of the challenges that can occur after a head injury.</p><p>As a freshman in my second semester in college, I had adapted to the challenges of campus life and was really learning to enjoy the freedom of making my own decisions. My major was computer science and my love for mathematics was fed through the required coursework. My brother was about to join the Air Force, so he came to stay a weekend before he was going to go off to basic training.</p><p>We had a great time hanging out and doing crazy things to build memories before life got serious. The following Thursday, my dad and brother came to pick me up for the weekend, so I could see him off the next day.</p><p>When I got back from my evening class at 9:30, we talked with some of my floor mates about what had happened the prior weekend. My dad was a great kidder and everyone loved to be around him.</p><p>After we packed up my laundry, after all I was going home, we set off for home. It was a cold rainy St. Patrick’s day. I don’t remember all of the details, but I do remember that the trip seemed much longer than usual. After about twenty minutes on the road, the accident that would change my family’s life happened.</p><p>I remember seeing the bright lights of the truck, as it approached my side window. At least I think I remember it. My memories from the rest of the night are less sequential. I’ve talked to many people that have sustained traumatic brain injuries in auto accidents, and it is common/typical for memories to be foggy or non existent. Somehow I made it out of the car, and so did my brother.</p><p>I don’t exactly know where my brother was, but I know that he rolled out of the car after the large truck T-boned our little station wagon. My next memory is of a kind angelic woman comforting me, while my dad was trapped inside of the vehicle. At one point someone’s yelled that he wasn’t breathing. Fortunately, that wasn’t true, or they brought him back. I don’t really know which. I have no idea how I got to the hospital, but I can say that it seemed like I was sitting on the curb in the cold drizzling night for what seemed to be an eternity. I heard someone shrieking in terror, pain, and agony. It seemed incessant and unlike anything I’d ever heard before. Eventually, I realized that terror emanated from me.</p><p>I don’t remember it stopping, and I don’t remember how they got my dad out of the car, but I know it involved the jaws of life. Like I said earlier, I don’t know how we got to the hospital, I just know that my Dad’s surgeries took all night. We both had sustained serious brain injuries. My dad was in the hospital for a long time. I had not yet been diagnosed with my TBI. Monday, I went back to school to finish the semester. I had separated my shoulder and was treated on an outpatient basis for the physical bodily injuries I had sustained.</p><p>My dad was in a coma for forty days. I was at school with an undiagnosed head injury. While my dad lie comatose back home, I persevered back at school. It was a horrible experience. I was always afraid I would get a phone call telling me my father was gone. Also, I had uncontrollable head pain and was tired all the time. School was now nearly impossible, and I felt alone. My family was back home visiting dad all day everyday, and I was struggling at college. I completed the semester and passed a class or two. It was a dreadful semester. I would have many more like it through my undergraduate program.</p><p>I ended up changing majors from computer science to fine art, my other passion. But it still hurt to not be able to do the math. About the time that spring semester ended and I went home for the summer, my dad came out of the coma. The hospital told us he was no longer in a coma. It was nothing like in the movies. The only way I knew he was out of the coma was because they told us so.</p><p>My dad took years to recover, and I’m not even sure what that means. He is no longer the same person he was before that fateful night, and his life has had no shortage of challenges to overcome since the accident. It took three years for my TBI to be diagnosed. After having a tonic-clonic seizure on a boat, testing and evaluations were done and my diagnosis was affirmed. Because of my father’s injuries, mine were always viewed as less severe by my family. However, the seizures, chronic head pain, depression, and other residual impairments all are part of my trauma.</p><p>My dad is now eighty and I have persevered through my bachelor of fine arts, three master’s degrees, and a PhD in accounting. The TBI is part of me, but it isn’t me. After many years, my father and I have learned to cope with <strong>the trauma</strong>, but it will always be a part of you.</p>								</div>
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									<p>Other articles you may like:</p><ul><li><a href="https://www.jumbledbrain.com/2020/02/20/living-with-a-brain-injury-in-an-ableist-society/">Living with a brain injury in an ableist society</a></li><li><a href="https://www.jumbledbrain.com/2020/01/25/guest-post-hope-clark-on-my-new-normal-following-her-brain-injury/">Guest post: Hope Clark on &#8220;My new normal&#8221; following her brain injury.</a></li><li><a href="https://www.jumbledbrain.com/2019/10/29/brain-injury-survivor-explains-why-your-career-isnt-your-self-worth/">Brain injury survivor explains why your career isn&#8217;t your self-worth</a></li><li><a href="https://www.jumbledbrain.com/2019/08/28/dehydration-must-be-avoided-by-brain-injury-survivors/">Dehydration must be avoided by brain injury survivors</a></li><li><a href="https://www.jumbledbrain.com/2019/08/12/are-these-brain-zaps-just-anxiety-or-my-brain-injury/">Are these brain zaps just anxiety or my brain injury?</a></li></ul>								</div>
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					<h3 class="elementor-heading-title elementor-size-default">Have people tried to compare the trauma of your TBI to theirs and made it feel like a race to the bottom? How can we make sure people don't get overlooked?</h3>				</div>
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		<p>The post <a href="https://www.jumbledbrain.com/traumatic-brain-injury-understanding-the-trauma-by-dr-rob-tennant/">Traumatic Brain Injury: understanding the trauma by Dr Rob Tennant</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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		<title>Guest post: 7 Common Behavioral Effects of Brain Injury and How to Deal With Them</title>
		<link>https://www.jumbledbrain.com/guest-post-7-common-behavioral-effects-of-brain-injury-and-how-to-deal-with-them/</link>
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		<dc:creator><![CDATA[Michelle #jumbledbrain]]></dc:creator>
		<pubDate>Tue, 23 Jul 2019 19:46:30 +0000</pubDate>
				<category><![CDATA[Brain injury, TBI, ABI]]></category>
		<category><![CDATA[Guest post]]></category>
		<category><![CDATA[behaviour]]></category>
		<category><![CDATA[brain injury]]></category>
		<category><![CDATA[caregivers]]></category>
		<category><![CDATA[communication]]></category>
		<category><![CDATA[coping]]></category>
		<category><![CDATA[Depression]]></category>
		<category><![CDATA[emotional response]]></category>
		<category><![CDATA[family]]></category>
		<category><![CDATA[friends]]></category>
		<category><![CDATA[mood swings]]></category>
		<category><![CDATA[support]]></category>
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		<category><![CDATA[understanding]]></category>
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					<description><![CDATA[<p>These are the 7 most common  behavioural issues brain injury survivors can experience, plus Hazel shares her ideas on how loved ones an cope with them. Patience and understanding are key, but so is your sanity.</p>
<p>The post <a href="https://www.jumbledbrain.com/guest-post-7-common-behavioral-effects-of-brain-injury-and-how-to-deal-with-them/">Guest post: 7 Common Behavioral Effects of Brain Injury and How to Deal With Them</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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															<img loading="lazy" decoding="async" data-attachment-id="16795" data-permalink="https://www.jumbledbrain.com/guest-post-7-common-behavioral-effects-of-brain-injury-and-how-to-deal-with-them/7-common-behavioral-effects-of-brain-injury-how-to-deal-with-them/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-Brain-injury-how-to-deal-with-them.png?fit=1600%2C900&amp;ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="7 Common behavioral effects of Brain injury &amp;#038; how to deal with them" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-Brain-injury-how-to-deal-with-them.png?fit=300%2C169&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-Brain-injury-how-to-deal-with-them.png?fit=580%2C326&amp;ssl=1" width="1600" height="900" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-Brain-injury-how-to-deal-with-them.png?fit=1600%2C900&amp;ssl=1" class="attachment-full size-full wp-image-16795" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-Brain-injury-how-to-deal-with-them.png?w=1600&amp;ssl=1 1600w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-Brain-injury-how-to-deal-with-them.png?resize=300%2C169&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-Brain-injury-how-to-deal-with-them.png?resize=1024%2C576&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-Brain-injury-how-to-deal-with-them.png?resize=768%2C432&amp;ssl=1 768w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-Brain-injury-how-to-deal-with-them.png?resize=1536%2C864&amp;ssl=1 1536w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-Brain-injury-how-to-deal-with-them.png?resize=1200%2C675&amp;ssl=1 1200w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="16795" data-permalink="https://www.jumbledbrain.com/guest-post-7-common-behavioral-effects-of-brain-injury-and-how-to-deal-with-them/7-common-behavioral-effects-of-brain-injury-how-to-deal-with-them/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-Brain-injury-how-to-deal-with-them.png?fit=1600%2C900&amp;ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="7 Common behavioral effects of Brain injury &amp;#038; how to deal with them" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-Brain-injury-how-to-deal-with-them.png?fit=300%2C169&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-Brain-injury-how-to-deal-with-them.png?fit=580%2C326&amp;ssl=1" />															</div>
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									<p>Today&#8217;s article is written by Hazel Ann Westco.</p><p>Hazel Ann Westco is a start-up freelance writer. She is interested in writing blogs and articles related to legal cases mainly in personal injury and employment.  Whenever she has free time she rides her bicycle or motorcycle for a road trip. You can follow her on Twitter using her handle <a href="https://twitter.com/AnnWestco">@AnnWestco</a>.</p><p>She has looked into some of the <strong>behavioral effects of brain injury</strong> and has some tips on what to do when they arise.</p>								</div>
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									<p>A brain injury can have various physical, cognitive, medical, emotional, and behavioral effects on head injury survivors. Of these changes, behavioral changes can be one of the most challenging for survivors to overcome to live happier and more independently. To help survivors with <u><a href="https://www.mesrianilaw.com/blog/what-is-traumatic-brain-injury.html">traumatic brain injury</a></u> (TBI), families and caregivers should learn to understand their behavior and develop practical ways to address those challenges.</p><h4><span style="color: #003300;">Why Does Brain Injury Affect Emotions?</span></h4><p>Behavioral problems following TBI are often the result of damage to the frontal lobe, the area of the brain that controls “executive functions.” Executive functions refer to the set of skills a person uses to plan, create, evaluate, organize, evaluate, reason, communicate, and solve problems. These impairments have a significant impact on how a person behaves.</p><h4><span style="color: #003300;">Common Behavioral Changes Experienced by TBI Survivors</span></h4><p>Human behavior is complex and multi-faceted. This means it can be difficult to isolate which behavior is a result of TBI. A TBI patients behavior is, after all, influenced by many different factors, like the nature of the injury, their pre- and post-injury experience, their cognitive abilities, or the behavior of other people. But some of the most common behavior changes encountered by TBI survivors include:</p><p><span style="text-decoration: underline;"><span style="color: #003300;"><strong>1. Memory Problems</strong></span></span></p><p>Most people diagnosed with a brain disorder may experience memory problems, but they are more common among TBI survivors as a result of an injury from the bony protrusions inside the skull. Typical situations include forgetting a person’s name, losing a train of thought, and difficulty learning new things.</p><p><span style="text-decoration: underline; color: #003300;"><strong>2. Temper Outbursts</strong></span></p><p>Family members of people with TBI often describe their loved one as someone with a quick temper. They may use bad language, throw objects, or slam doors. Drastic changes like the loss of independence and inability to follow a conversation, in particular, can make a person with TBI more prone to these temper outbursts.</p><p><span style="text-decoration: underline; color: #003300;"><strong>3. Depression</strong></span></p><p>Depression among people with TBI can arise because of the struggle to adjust to disabilities and the changes to one’s role in the family and society. Symptoms of depression include feelings of worthlessness, suicidal thoughts, changes in sleep and appetite, and withdrawal from peers.</p><p><span style="text-decoration: underline; color: #003300;"><strong>4. Poor Concentration</strong></span></p><p>TBI affects a person’s attention and concentration abilities, posing a challenge to work, study, and everyday living. Poor concentration manifests itself in difficulty multitasking, following conversations, and processing information. This happens when the lateral intraparietal cortex—the region of the brain responsible for controlling attention—suffers damage.</p><p><span style="text-decoration: underline; color: #003300;"><strong>5. Self-Centered Attitude</strong></span></p><p>It’s common for TBI survivors to show signs of egocentrism. In turn, this could hamper their ability to see things from another person’s point of view which severely impact their relationship with family members, especially if they used to be a caring person. And although it is often taken for granted, the ability to understand another’s perspective is a complex cognitive skill.</p><p><span style="text-decoration: underline; color: #003300;"><strong>6. Aggressive Behavior</strong></span></p><p>Aggressive behavior following a TBI is often impulsive. A person with TBI can easily grow agitated over trivial disagreements. Experts explain that aggression that happens directly after the TBI is the result of delirium and other post-injury medications. Aggression up to three months after TBI, on the other hand, happens as a result of depression, chronic pain, and post-traumatic stress disorder.</p><p><span style="text-decoration: underline; color: #003300;"><strong>7. Lower Sex Drive</strong></span></p><p>A decreased desire or interest in sex is more common among TBI survivors than heightened libido. Disinhibited sexual behavior can be a possible effect of poor awareness and impulsivity. Changes in sexual functioning following TBI can be due to hormonal changes, medication side effects, fatigue, and movement problems.</p>								</div>
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															<img loading="lazy" decoding="async" data-attachment-id="13745" data-permalink="https://www.jumbledbrain.com/guest-post-7-common-behavioral-effects-of-brain-injury-and-how-to-deal-with-them/7-common-behavioral-effects-of-brain-injury-how-to-deal-with-them-2/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-brain-injury-how-to-deal-with-them-...png?fit=1080%2C1080&amp;ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="7 Common behavioral effects of brain injury &amp;#038; how to deal with them .." data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-brain-injury-how-to-deal-with-them-...png?fit=300%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-brain-injury-how-to-deal-with-them-...png?fit=580%2C580&amp;ssl=1" width="580" height="580" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-brain-injury-how-to-deal-with-them-...png?fit=580%2C580&amp;ssl=1" class="attachment-medium_large size-medium_large wp-image-13745" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-brain-injury-how-to-deal-with-them-...png?w=1080&amp;ssl=1 1080w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-brain-injury-how-to-deal-with-them-...png?resize=300%2C300&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-brain-injury-how-to-deal-with-them-...png?resize=1024%2C1024&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-brain-injury-how-to-deal-with-them-...png?resize=150%2C150&amp;ssl=1 150w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-brain-injury-how-to-deal-with-them-...png?resize=768%2C768&amp;ssl=1 768w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="13745" data-permalink="https://www.jumbledbrain.com/guest-post-7-common-behavioral-effects-of-brain-injury-and-how-to-deal-with-them/7-common-behavioral-effects-of-brain-injury-how-to-deal-with-them-2/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-brain-injury-how-to-deal-with-them-...png?fit=1080%2C1080&amp;ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="7 Common behavioral effects of brain injury &amp;#038; how to deal with them .." data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-brain-injury-how-to-deal-with-them-...png?fit=300%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/07/7-Common-behavioral-effects-of-brain-injury-how-to-deal-with-them-...png?fit=580%2C580&amp;ssl=1" />															</div>
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									<h4><span style="color: #003300;">Coping with a Loved One with Head Injury</span></h4><p>People with TBI showing signs of these behavior problems should be evaluated by a doctor so they can receive proper treatment. On top of medical intervention, friends and family of survivors should also actively participate in rehabilitation, recovery, and advocacy.</p><p><span style="text-decoration: underline;"><strong><span style="color: #003300; text-decoration: underline;">1. Set Realistic Expectations</span></strong></span></p><p>Brain injury has lifelong effects. It pays to understand that a person with TBI might already be trying his or her best. Every member of the family can have different abilities, skills, comfort levels, and limitations, so set small goals and acknowledge that every day is an achievement.</p><p><span style="text-decoration: underline;"><strong><span style="color: #003300; text-decoration: underline;">2. Get Involved</span></strong></span></p><p>Behavioral problems are often hard to deal with. But try to resist the temptation of <u><a href="https://www.jumbledbrain.com/2017/03/02/impatient-tips-brain-injury/">avoiding difficult situations</a></u>. People with TBI could end up feeling more confused and isolated if left alone. Instead, get involved and familiarize yourself with their day-to-day routine.</p><p><span style="text-decoration: underline; color: #003300;"><strong>3. Encourage Independence</strong></span></p><p>Learning how to comfort a loved one with TBI is a must. But tread carefully: there is a fine line between caring for people and smothering them with affection. Try to instill independence and study their behavior to know the right time to provide comfort.</p><p><span style="text-decoration: underline; color: #003300;"><strong>4. Reinforce Positive Behavior</strong></span></p><p>What used to come easy to a TBI survivor may now feel extremely difficult. Reinforce positive behavior by focusing on the patient’s strengths, rather than pointing fingers or directing behavior.</p><p><span style="text-decoration: underline; color: #003300;"><strong>5. Rediscover Preferences</strong></span></p><p>Stay alert and pay attention to the wants and needs of a person with TBI. Discover new ways they can engage in activities and establish a balance between easy and difficult tasks. And always encourage them to participate, instead of assuming that their injury makes them unable to.</p><p><span style="text-decoration: underline; color: #003300;"><strong>6. Confide with Loved Ones</strong></span></p><p>Honesty is the best policy, and confiding in friends and family members can help alleviate the burden. Enlisting others for support can provide a fresh perspective and make it easier to identify triggers and how to avoid them.</p><p><span style="text-decoration: underline;"><strong><span style="color: #003300; text-decoration: underline;">7. Bounce Back Quickly</span></strong></span></p><p>Accept that encountering behavioral problems is a part of life. Avoid getting stuck by teaching</p><p>new skills while a person is upset. Bounce back quickly from these obstacles then revisit them again later since people aren’t receptive to learning new things when they’re upset.</p>								</div>
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									<p>Other articles you may like:</p><ul><li><a href="https://www.jumbledbrain.com/2018/03/12/brain-injury-keeps-phasing-out/">I am listening&#8230; just my brain injury keeps phasing out.</a></li><li><a href="https://www.jumbledbrain.com/2018/03/06/guest-post-rob-dunn-on-families-denial-of-brain-injury/">Guest post: Rob Dunn on family&#8217;s denial of brain injury</a></li><li><a href="https://www.jumbledbrain.com/2018/02/26/guest-post-rich-parry-jones-brain-injury-husband-and-carer/">Guest post: Rich Parry-Jones, brain injury survivors husband &amp; carer.</a></li><li><a href="https://www.jumbledbrain.com/2018/02/13/brain-injury-making-bad-friend/">Is my brain injury making me a bad friend?</a></li><li><a href="https://www.jumbledbrain.com/2018/01/03/missing-obvious-mistake-brain-injury/">Missing the obvious mistakes after brain injury</a></li></ul>								</div>
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					<h3 class="elementor-heading-title elementor-size-default">Have you or a brain injury survivor you know struggled with these behavioural issues? What advice would you give to others?</h3>				</div>
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		<p>The post <a href="https://www.jumbledbrain.com/guest-post-7-common-behavioral-effects-of-brain-injury-and-how-to-deal-with-them/">Guest post: 7 Common Behavioral Effects of Brain Injury and How to Deal With Them</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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		<title>Guest post: The gifts of my traumatic brain injury</title>
		<link>https://www.jumbledbrain.com/guest-post-the-gifts-of-my-traumatic-brain-injury/</link>
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		<dc:creator><![CDATA[Michelle #jumbledbrain]]></dc:creator>
		<pubDate>Thu, 04 Apr 2019 16:07:24 +0000</pubDate>
				<category><![CDATA[Brain injury, TBI, ABI]]></category>
		<category><![CDATA[Guest post]]></category>
		<category><![CDATA[brain injury]]></category>
		<category><![CDATA[depressed]]></category>
		<category><![CDATA[Depression]]></category>
		<category><![CDATA[expectations]]></category>
		<category><![CDATA[fatigue]]></category>
		<category><![CDATA[frustrated]]></category>
		<category><![CDATA[gifts]]></category>
		<category><![CDATA[learn]]></category>
		<category><![CDATA[memory]]></category>
		<category><![CDATA[Mental Health]]></category>
		<category><![CDATA[moving forward]]></category>
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					<description><![CDATA[<p>This inspiring young man has written another post for us. Here he explains how he tackled the negative thoughts he was plagued with following his traumatic brain injury. In fact, he is now able to be so positive about it that he has named some of the gifts he feels his brain injury has given [&#8230;]</p>
<p>The post <a href="https://www.jumbledbrain.com/guest-post-the-gifts-of-my-traumatic-brain-injury/">Guest post: The gifts of my traumatic brain injury</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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															<img loading="lazy" decoding="async" data-attachment-id="13896" data-permalink="https://www.jumbledbrain.com/guest-post-the-gifts-of-my-traumatic-brain-injury/the-gifts-of-my-traumatic-brain-injury/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-gifts-of-my-traumatic-brain-injury.png?fit=1600%2C900&amp;ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="The gifts of my traumatic brain injury" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-gifts-of-my-traumatic-brain-injury.png?fit=300%2C169&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-gifts-of-my-traumatic-brain-injury.png?fit=580%2C326&amp;ssl=1" width="1600" height="900" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-gifts-of-my-traumatic-brain-injury.png?fit=1600%2C900&amp;ssl=1" class="attachment-full size-full wp-image-13896" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-gifts-of-my-traumatic-brain-injury.png?w=1600&amp;ssl=1 1600w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-gifts-of-my-traumatic-brain-injury.png?resize=300%2C169&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-gifts-of-my-traumatic-brain-injury.png?resize=1024%2C576&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-gifts-of-my-traumatic-brain-injury.png?resize=768%2C432&amp;ssl=1 768w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-gifts-of-my-traumatic-brain-injury.png?resize=1536%2C864&amp;ssl=1 1536w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-gifts-of-my-traumatic-brain-injury.png?resize=1200%2C675&amp;ssl=1 1200w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="13896" data-permalink="https://www.jumbledbrain.com/guest-post-the-gifts-of-my-traumatic-brain-injury/the-gifts-of-my-traumatic-brain-injury/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-gifts-of-my-traumatic-brain-injury.png?fit=1600%2C900&amp;ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="The gifts of my traumatic brain injury" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-gifts-of-my-traumatic-brain-injury.png?fit=300%2C169&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-gifts-of-my-traumatic-brain-injury.png?fit=580%2C326&amp;ssl=1" />															</div>
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									<p>This inspiring young man has written another post for us. Here he explains how he tackled the negative thoughts he was plagued with following his traumatic brain injury. In fact, he is now able to be so positive about it that he has named some of the gifts he feels his brain injury has given him.</p><p><strong>About the Author:</strong></p><p>Brandon Leuangpaseuth is a writer from San Diego, CA that helps various<a style="background-color: #ffffff;" href="https://www.dickersonoxton.com/brain-injury/"> <span style="color: #ff5757;">brain injury attorneys </span></a>across the country with their public relations. You can connect with him on LinkedIn <span style="color: #ff5757;"><u><a style="color: #ff5757;" href="https://www.linkedin.com/in/bleuangpaseuth/">@</a></u> <a style="color: #ff5757;" href="https://www.linkedin.com/in/bleuangpaseuth/">bleuangpaseuth.</a>C</span></p>								</div>
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									<p class="t pg-1m0 pg-1x0 pg-1h3 pg-1y3 pg-1ff2 pg-1fs1 pg-1fc0 pg-1sc0 pg-1ls0 pg-1ws0"><span style="font-size: 14pt;">When I was only 20-years old, I was hit by a car. My body was flung 20-feet across the freeway.</span></p><div class="t pg-1m0 pg-1x0 pg-1h3 pg-1y4 pg-1ff2 pg-1fs1 pg-1fc0 pg-1sc0 pg-1ls0 pg-1ws0"><span style="font-size: 14pt;">I shattered my jaw, collarbone, nose, and it left me with a serious traumatic brain injury (TBI). After a month, I was released from the hospital. I quickly realized how difficult life would be living with a TBI. I had all the symptoms of a severe traumatic brain injury. I had short-term memory loss, fatigued easily, slept more than usual, suffered dreadful migraines, etc.</span></div><div class="t pg-1m0 pg-1x0 pg-1h3 pg-1y8 pg-1ff2 pg-1fs1 pg-1fc0 pg-1sc0 pg-1ls0 pg-1ws0"><p><span style="font-size: 14pt;">After I was released from the hospital, I spiralled into a deep depression.</span></p></div><div class="t pg-1m0 pg-1x0 pg-1h4 pg-1y9 pg-1ff3 pg-1fs1 pg-1fc0 pg-1sc0 pg-1ls0 pg-1ws0"><span style="font-size: 14pt;">How was I going to find a job?</span><br /><span style="font-size: 14pt;">How was I going to graduate from college?</span><br /><span style="font-size: 14pt;">How was I going to pursue my dreams with this disability?</span><br /><span style="font-size: 1rem;"><br /></span></div><div class="t pg-1m0 pg-1x0 pg-1h3 pg-1yb pg-1ff2 pg-1fs1 pg-1fc0 pg-1sc0 pg-1ls0 pg-1ws0"><span style="font-size: 14pt;">Imagine being so young and sustaining such a life-altering injury. It felt like my world came </span><span style="font-size: 14pt;">crashing down&#8230;and it was hard to get out of bed every day. When I did get out of bed, I found </span><span style="font-size: 14pt;">myself walking around the block countlessly worrying about my future. I sought help from a </span><span style="font-size: 14pt;">therapist to help ease the burden of these constant negative thoughts. I recall in a session, I </span><span style="font-size: 14pt;">broke down and sobbed to the therapist about how I would never be the same again after my </span><span style="font-size: 14pt;">brain injury. </span><span style="font-size: 14pt;">As I gushed out my sorrows, I remember my therapist looking down at her notepad, slowly back</span></div><div class="t pg-1m0 pg-1x0 pg-1h3 pg-1y12 pg-1ff2 pg-1fs1 pg-1fc0 pg-1sc0 pg-1ls0 pg-1ws0"><span style="font-size: 14pt;">up at me and then muttered: <span class="pg-1ff3">“what if this was a gift?&#8221;</span></span></div><div> </div><div><div class="t pg-2m0 pg-2x0 pg-2h1 pg-2y0 pg-2ff1 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"><span style="font-size: 14pt;">Those words shook me like a tremoring earthquake. I stared at her wide-eyed for what seemed </span><span style="font-size: 14pt;">like an eternity. <span class="pg-2ff2">How could receiving a brain injury be a gift?</span> I thought to myself.</span></div><div class="t pg-2m0 pg-2x0 pg-2h1 pg-2y1 pg-2ff1 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"> </div><h3 class="t pg-2m0 pg-2x0 pg-2h2 pg-2y2 pg-2ff2 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"><span style="color: #003300;">&#8212; Fast forward 4 years later&#8211;</span></h3><div class="t pg-2m0 pg-2x0 pg-2h1 pg-2y3 pg-2ff1 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"><span style="font-size: 14pt;">Now, 4 years after I received my traumatic brain injury, I can look back and see what my </span><span style="font-size: 14pt;">therapist was trying to do. The effects of my brain injury were still there, but my perception of </span><span style="font-size: 14pt;">how the effects impacted my life changed. This helped me adapt and cope with living with my </span><span style="font-size: 14pt;">brain injury better.</span></div><div class="t pg-2m0 pg-2x0 pg-2h1 pg-2y6 pg-2ff1 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"> </div><div class="t pg-2m0 pg-2x0 pg-2h1 pg-2y7 pg-2ff1 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"><span style="font-size: 14pt;">Of course, life is different with a brain injury, but changing my perception of the effects of my </span><span style="font-size: 14pt;">brain injury has helped me cope a lot.</span></div><div> </div><div class="t pg-2m0 pg-2x0 pg-2h1 pg-2y9 pg-2ff1 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"><span style="font-size: 14pt;">Here are the gifts my TBI has given me <img src="https://s.w.org/images/core/emoji/17.0.2/72x72/1f642.png" alt="🙂" class="wp-smiley" style="height: 1em; max-height: 1em;" /></span></div></div>								</div>
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															<img loading="lazy" decoding="async" data-attachment-id="14407" data-permalink="https://www.jumbledbrain.com/guest-post-the-gifts-of-my-traumatic-brain-injury/the-gifts-of-my-traumatic-brain-injury-2/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-GIFTS-of-my-traumatic-brain-injury-.png?fit=1080%2C1080&amp;ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="The GIFTS of my traumatic brain injury" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-GIFTS-of-my-traumatic-brain-injury-.png?fit=300%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-GIFTS-of-my-traumatic-brain-injury-.png?fit=580%2C580&amp;ssl=1" width="580" height="580" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-GIFTS-of-my-traumatic-brain-injury-.png?fit=580%2C580&amp;ssl=1" class="attachment-medium_large size-medium_large wp-image-14407" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-GIFTS-of-my-traumatic-brain-injury-.png?w=1080&amp;ssl=1 1080w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-GIFTS-of-my-traumatic-brain-injury-.png?resize=300%2C300&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-GIFTS-of-my-traumatic-brain-injury-.png?resize=1024%2C1024&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-GIFTS-of-my-traumatic-brain-injury-.png?resize=150%2C150&amp;ssl=1 150w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-GIFTS-of-my-traumatic-brain-injury-.png?resize=768%2C768&amp;ssl=1 768w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="14407" data-permalink="https://www.jumbledbrain.com/guest-post-the-gifts-of-my-traumatic-brain-injury/the-gifts-of-my-traumatic-brain-injury-2/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-GIFTS-of-my-traumatic-brain-injury-.png?fit=1080%2C1080&amp;ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="The GIFTS of my traumatic brain injury" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-GIFTS-of-my-traumatic-brain-injury-.png?fit=300%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2019/04/The-GIFTS-of-my-traumatic-brain-injury-.png?fit=580%2C580&amp;ssl=1" />															</div>
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									<div><h3 class="t pg-2m0 pg-2x1 pg-2h3 pg-2ya pg-2ff3 pg-2fs1 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"><strong><span style="color: #003300;">1. It Made Me More Organized</span></strong></h3><div class="t pg-2m0 pg-2x0 pg-2h1 pg-2yb pg-2ff1 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"><span style="font-size: 14pt;">At first, after I received the brain injury, I tried to remember all the things that I needed to do during the day in my head as I had prior to getting hit by the car. Not surprisingly, I failed&#8230; miserably. I would mix up things up in my schedule and always forget to do certain tasks that I needed to do on some days…</span></div><div class="t pg-2m0 pg-2x0 pg-2h1 pg-2ye pg-2ff1 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"> </div><div class="t pg-2m0 pg-2x0 pg-2h1 pg-2yf pg-2ff1 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"><span style="font-size: 14pt;">I remember one day in an outpatient therapy session at my intensive rehab centre, my therapist told me something that stuck with me.</span></div><div class="t pg-2m0 pg-2x0 pg-2h1 pg-2y10 pg-2ff1 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"> </div><div class="t pg-2m0 pg-2x0 pg-2h2 pg-2y11 pg-2ff2 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"><span style="font-size: 14pt;">“You do not need a good memory as long as you have good reminder systems in place. Use your phone, calendar, and computer to help you build reminder systems to where it is almost impossible to forget!”</span></div><div class="t pg-2m0 pg-2x0 pg-2h2 pg-2y13 pg-2ff2 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"> </div><div class="t pg-2m0 pg-2x0 pg-2h1 pg-2y14 pg-2ff1 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"><span style="font-size: 14pt;">After I heard that, I made it an effort to strategically develop systems to where I did not have to rely on my memory too much. If someone told me to do something or I had to do something in the future, I would immediately set up reminders on my phone to go off and remind me. I would develop to-do lists on my phone almost every day laying out what needed to get done as well as</span></div><div class="t pg-2m0 pg-2x0 pg-2h1 pg-2y18 pg-2ff1 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"><span style="font-size: 14pt;">maintain an up to date calendar with all the events or things I had to do in my life. I outsourced that part of my brain to technology.</span></div><div class="t pg-2m0 pg-2x0 pg-2h1 pg-2y19 pg-2ff1 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"> </div><div class="t pg-2m0 pg-2x0 pg-2h2 pg-2y1a pg-2ff2 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"><span style="font-size: 14pt;">The result?</span></div><div class="t pg-2m0 pg-2x0 pg-2h1 pg-2y1b pg-2ff1 pg-2fs0 pg-2fc0 pg-2sc0 pg-2ls0 pg-2ws0"><span style="font-size: 14pt;">I am way more organized and on top of my stuff more so than I was prior to the accident! I have become so organized, it is very rare (and even bizarre!) for me to miss something. I have developed good organization systems and habits that made me on top of all my stuff. I am grateful that my TBI has helped organize my life.</span></div><div> </div><div><h3 class="t pg-3m0 pg-3x0 pg-3h1 pg-3y0 pg-3ff1 pg-3fs0 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"><span style="color: #003300;"><strong>2. I Prioritized My Life</strong></span></h3><div class="t pg-3m0 pg-3x1 pg-3h2 pg-3y1 pg-3ff2 pg-3fs1 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"><span style="font-size: 14pt;">One of the most impactful effects of my TBI is that I fatigued easier. Experiencing this really made me look back at my life and realize I took my energy for granted when I was younger. I used to have a ton of energy to do things all day&#8211;nonstop! That changed after the accident.</span></div><div class="t pg-3m0 pg-3x1 pg-3h2 pg-3y4 pg-3ff2 pg-3fs1 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"> </div><div class="t pg-3m0 pg-3x1 pg-3h2 pg-3y5 pg-3ff2 pg-3fs1 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"><span style="font-size: 14pt;">This symptom of quick fatigue is the most prevalent one in my life today and is still tough to adapt to. I only have a set amount of energy to do things in my life before I received a numbing brain fog and I exhausted…</span></div><div class="t pg-3m0 pg-3x1 pg-3h2 pg-3y7 pg-3ff2 pg-3fs1 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"> </div><div class="t pg-3m0 pg-3x1 pg-3h2 pg-3y8 pg-3ff2 pg-3fs1 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"><span style="font-size: 14pt;">I quickly learned how to reevaluate and prioritize my life. This meant I had to rank in my life what was important for me to get done and decide where I had to allocate my little energy too. In other words, <span class="pg-3ff1">I only did what was important to me.</span></span></div><div class="t pg-3m0 pg-3x1 pg-3h2 pg-3ya pg-3ff2 pg-3fs1 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"><span class="pg-3ff1" style="font-size: 14pt;"> </span></div><div class="t pg-3m0 pg-3x1 pg-3h2 pg-3yb pg-3ff2 pg-3fs1 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"><span style="font-size: 14pt;">I cut out a lot of meaningless activities in my life such as watching television or aimlessly browsing the internet to hone in on the truly vital activities like exercising or hanging out with friends. I had to say “no” to activities in my life that would not be a good use of my resources. This has led me to really consider my values and what is important to me in my life!</span></div><h3 class="t pg-3m0 pg-3x0 pg-3h1 pg-3yf pg-3ff1 pg-3fs0 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"><span style="color: #003300;"><strong>3. I Accidentally Stopped Taking Things Too Personally</strong></span></h3><div class="t pg-3m0 pg-3x1 pg-3h2 pg-3y10 pg-3ff2 pg-3fs1 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"><span style="font-size: 14pt;">The majority of the time, having bad memory can be onerous to deal with. Always forgetting things can make life more difficult. However, I think there is one positive trait of having my abysmal memory. I <span class="pg-3ff3">accidentally </span>stopped taking things too personally.</span></div><div class="t pg-3m0 pg-3x1 pg-3h2 pg-3y12 pg-3ff2 pg-3fs1 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"> </div><div class="t pg-3m0 pg-3x1 pg-3h2 pg-3y13 pg-3ff2 pg-3fs1 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"><span style="font-size: 14pt;">What I mean by this is that I would just forget about certain negative interactions and move on. Before the accident, I used to get so caught up on little things like a someone not texting me back, insults or someone making me mad. These interactions would often ruin my day and stay on my mind for weeks upon weeks. I would think about them as I went about my life way past</span></div><div class="t pg-3m0 pg-3x1 pg-3h2 pg-3y17 pg-3ff2 pg-3fs1 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"><span style="font-size: 14pt;">after they occurred. These things would stay on my mind way longer than I would care to admit. Now, I just naturally forget about the interactions.</span></div><div class="t pg-3m0 pg-3x1 pg-3h2 pg-3y18 pg-3ff2 pg-3fs1 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"> </div><div class="t pg-3m0 pg-3x1 pg-3h2 pg-3y19 pg-3ff2 pg-3fs1 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"><span style="font-size: 14pt;">I would often forget if I had texted someone in the first place and they didn’t respond or if an interaction went sour. I would just forget and move on. My poor memory was a blessing in disguise in regards to this aspect of my life.</span></div><div class="t pg-3m0 pg-3x1 pg-3h2 pg-3y1b pg-3ff2 pg-3fs1 pg-3fc0 pg-3sc0 pg-3ls0 pg-3ws0"> </div><div><h3 class="t pg-4m0 pg-4x1 pg-4h2 pg-4y1 pg-4ff1 pg-4fs0 pg-4fc0 pg-4sc0 pg-4ls0 pg-4ws0"><strong><span style="color: #003300;">4. Got Me In The Habit Of Taking Care Of Myself</span></strong></h3><div class="t pg-4m0 pg-4x0 pg-4h3 pg-4y2 pg-4ff2 pg-4fs1 pg-4fc0 pg-4sc0 pg-4ls0 pg-4ws0"><span style="font-size: 14pt;">Brain injuries are tricky injuries. If you break a bone, you can get an x-ray and see if the injury healed or the bones mended back together. For the brain, it is tougher to measure or see. I remember sitting in my neurologist&#8217;s office and her telling me that the best thing I can do to heal my brain would be to take care of myself. She mentioned to me that I should eat right, exercise, get a lot of sleep and avoid alcohol.</span></div><div class="t pg-4m0 pg-4x0 pg-4h3 pg-4y6 pg-4ff2 pg-4fs1 pg-4fc0 pg-4sc0 pg-4ls0 pg-4ws0"> </div><div class="t pg-4m0 pg-4x0 pg-4h3 pg-4y7 pg-4ff2 pg-4fs1 pg-4fc0 pg-4sc0 pg-4ls0 pg-4ws0"><span style="font-size: 14pt;">I took her words to heart. Since I could not see the healing of my brain in an x-ray or anything like that, I promised myself to take care of myself, do my best to give my brain the best chance to heal and just hope for the best.</span></div><div class="t pg-4m0 pg-4x0 pg-4h3 pg-4y9 pg-4ff2 pg-4fs1 pg-4fc0 pg-4sc0 pg-4ls0 pg-4ws0"> </div><div class="t pg-4m0 pg-4x0 pg-4h3 pg-4ya pg-4ff2 pg-4fs1 pg-4fc0 pg-4sc0 pg-4ls0 pg-4ws0"><span style="font-size: 14pt;">I started to eat a really clean diet, I consistently attended the gym, avoided alcohol for a year, and was often in bed really early. This habit of taking care of myself did wonders for my brain injuries’ healing as well as in all other aspects of my life. I noticed substantial progress in my ability to remember things, I felt better all of the time and I got in great shape! Receiving a brain injury has made me adapt to a healthier lifestyle.</span></div><div class="t pg-4m0 pg-4x0 pg-4h3 pg-4ye pg-4ff2 pg-4fs1 pg-4fc0 pg-4sc0 pg-4ls0 pg-4ws0"> </div><div class="t pg-4m0 pg-4x0 pg-4h2 pg-4yf pg-4ff1 pg-4fs0 pg-4fc0 pg-4sc0 pg-4ls0 pg-4ws0"><span style="font-size: 14pt;">Change Your Perspective! In the last 4 years, with some help, I barely managed t<span class="pg-4fc2 pg-4sc0">o</span> <span class="pg-4fc1"><span class="pg-4fc2 pg-4sc0">g</span><span class="pg-4fc2 pg-4sc0">r</span><span class="pg-4fc2 pg-4sc0">a</span><span class="pg-4fc2 pg-4sc0">d</span><span class="pg-4fc2 pg-4sc0">u</span><span class="pg-4fc2 pg-4sc0">a</span><span class="pg-4fc2 pg-4sc0">t</span><span class="pg-4fc2 pg-4sc0">e</span> <span class="pg-4fc2 pg-4sc0">f</span><span class="pg-4fc2 pg-4sc0">r</span><span class="pg-4fc2 pg-4sc0">o</span><span class="pg-4fc2 pg-4sc0">m</span> <span class="pg-4fc2 pg-4sc0">co</span><span class="pg-4fc2 pg-4sc0">l</span><span class="pg-4fc2 pg-4sc0">l</span><span class="pg-4fc2 pg-4sc0">e</span><span class="pg-4fc2 pg-4sc0">g</span><span class="pg-4fc2 pg-4sc0">e</span></span> and was still able <span class="pg-4fc2 pg-4sc0">f</span><span class="pg-4fc2 pg-4sc0">i</span><span class="pg-4fc2 pg-4sc0">n</span><span class="pg-4fc2 pg-4sc0">d</span> <span class="pg-4fc2 pg-4sc0">a</span><span class="pg-4fc2 pg-4sc0">n</span> <span class="pg-4fc2 pg-4sc0">a</span><span class="pg-4fc2 pg-4sc0">m</span><span class="pg-4fc2 pg-4sc0">a</span><span class="pg-4fc2 pg-4sc0">zi</span><span class="pg-4fc2 pg-4sc0">n</span><span class="pg-4fc2 pg-4sc0">g</span> <span class="pg-4fc2 pg-4sc0">ca</span><span class="pg-4fc2 pg-4sc0">r</span><span class="pg-4fc2 pg-4sc0">e</span><span class="pg-4fc2 pg-4sc0">e</span><span class="pg-4fc2 pg-4sc0">r</span><span class="pg-4fc2 pg-4sc0">.</span> <span class="pg-4fc0">I credit a lot my mental health progress to my paradigm shift on how I </span>viewed my brain injury.</span></div><div class="t pg-4m0 pg-4x0 pg-4h3 pg-4y12 pg-4ff2 pg-4fs1 pg-4fc0 pg-4sc0 pg-4ls0 pg-4ws0"> </div><div class="t pg-4m0 pg-4x0 pg-4h3 pg-4y13 pg-4ff2 pg-4fs1 pg-4fc0 pg-4sc0 pg-4ls0 pg-4ws0"><span style="font-size: 14pt;">If there is one message I want to pass along to other brain injury survivors or other people, in general, is that sometimes you cannot change things that happen to you but you are responsible for how you perceive or react to them.</span></div><div class="t pg-4m0 pg-4x0 pg-4h3 pg-4y15 pg-4ff2 pg-4fs1 pg-4fc0 pg-4sc0 pg-4ls0 pg-4ws0"> </div><div class="t pg-4m0 pg-4x0 pg-4h3 pg-4y16 pg-4ff2 pg-4fs1 pg-4fc0 pg-4sc0 pg-4ls0 pg-4ws0"><span style="font-size: 14pt;">If you suffer from a TBI, try to reframe your perception of the effects of it. Living with a TBI can be burdensome. How I see it, is that I cannot really change the effects of the TBI, however, I could change my perception of how they impact my life to a more positive one. Try it out! Try to perceive your brain injury or supposedly negative events in your life in a more</span></div><div class="t pg-4m0 pg-4x0 pg-4h3 pg-4y1a pg-4ff2 pg-4fs1 pg-4fc0 pg-4sc0 pg-4ls0 pg-4ws0"><span style="font-size: 14pt;">positive light. I am sure it will help you cope and be happier <img src="https://s.w.org/images/core/emoji/17.0.2/72x72/1f642.png" alt="🙂" class="wp-smiley" style="height: 1em; max-height: 1em;" /></span></div></div></div></div>								</div>
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									<p>Other articles you may like:</p><ul><li><span style="color: #ff5757;"><a style="color: #ff5757;" href="https://www.jumbledbrain.com/2019/02/12/the-perfect-career-a-brain-injury/">You Can Find the Perfect Career After You Suffer A Traumatic Brain Injury</a>.</span></li><li><span style="color: #ff5757;"><a style="color: #ff5757;" href="https://www.jumbledbrain.com/2018/09/12/guest-post-mark-whelan-on-starting-again-after-a-brain-injury/">Guest post: Mark Whelan on starting again after a brain injury</a>.</span></li><li><span style="color: #ff5757;"><a style="color: #ff5757;" href="https://www.jumbledbrain.com/2017/07/31/life-post-brain-injury/">Life post brain injury: exclusive access to inside my head</a>.</span></li><li><span style="color: #ff5757;"><a style="color: #ff5757;" href="https://www.jumbledbrain.com/2016/12/23/brain-injury-fail/">Terrified I&#8217;ll fail after brain injury</a>.</span></li><li><a href="https://www.jumbledbrain.com/2016/09/19/im-lucky-not-for-the-reason-you-think/"><span style="color: #ff5757;">Lucky: Confessions of a brain injury survivor</span></a><span style="color: #ff5757;">.</span></li></ul>								</div>
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					<h3 class="elementor-heading-title elementor-size-default">Has your brain injury resulted in any positive changes that you now see as gifts?</h3>				</div>
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		<p>The post <a href="https://www.jumbledbrain.com/guest-post-the-gifts-of-my-traumatic-brain-injury/">Guest post: The gifts of my traumatic brain injury</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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		<title>Online support for brain injury survivors and caregivers</title>
		<link>https://www.jumbledbrain.com/online-support-for-brain-injury-survivors-and-caregivers/</link>
					<comments>https://www.jumbledbrain.com/online-support-for-brain-injury-survivors-and-caregivers/#comments</comments>
		
		<dc:creator><![CDATA[Michelle #jumbledbrain]]></dc:creator>
		<pubDate>Mon, 19 Nov 2018 10:49:28 +0000</pubDate>
				<category><![CDATA[Brain injury, TBI, ABI]]></category>
		<category><![CDATA[communication]]></category>
		<category><![CDATA[community]]></category>
		<category><![CDATA[connect]]></category>
		<category><![CDATA[help]]></category>
		<category><![CDATA[learn]]></category>
		<category><![CDATA[Mental Health]]></category>
		<category><![CDATA[moving forward]]></category>
		<category><![CDATA[online]]></category>
		<category><![CDATA[relationships]]></category>
		<category><![CDATA[speech and language]]></category>
		<category><![CDATA[support]]></category>
		<category><![CDATA[talking]]></category>
		<category><![CDATA[therapy]]></category>
		<category><![CDATA[tips]]></category>
		<category><![CDATA[try yourself]]></category>
		<category><![CDATA[understanding]]></category>
		<guid isPermaLink="false">https://www.jumbledbrain.com/?p=6287</guid>

					<description><![CDATA[<p>Hospitals do a great job at saving lives, and they are under constant pressure to support the public with a variety of health issues. When a patient gets rushed in with a brain injury, they launch into action, working tirelessly to stabilise them. Sometimes this takes hours, sometimes it takes months, but I think it&#8217;s [&#8230;]</p>
<p>The post <a href="https://www.jumbledbrain.com/online-support-for-brain-injury-survivors-and-caregivers/">Online support for brain injury survivors and caregivers</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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															<img loading="lazy" decoding="async" data-attachment-id="14085" data-permalink="https://www.jumbledbrain.com/online-support-for-brain-injury-survivors-and-caregivers/online-support-for-brain-injury-survivors-and-caregivers-4/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/11/Online-support-for-brain-injury-survivors-and-caregivers-1.png?fit=1600%2C900&amp;ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Online support for brain injury survivors and caregivers" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/11/Online-support-for-brain-injury-survivors-and-caregivers-1.png?fit=300%2C169&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/11/Online-support-for-brain-injury-survivors-and-caregivers-1.png?fit=580%2C326&amp;ssl=1" width="1600" height="900" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/11/Online-support-for-brain-injury-survivors-and-caregivers-1.png?fit=1600%2C900&amp;ssl=1" class="attachment-full size-full wp-image-14085" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/11/Online-support-for-brain-injury-survivors-and-caregivers-1.png?w=1600&amp;ssl=1 1600w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/11/Online-support-for-brain-injury-survivors-and-caregivers-1.png?resize=300%2C169&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/11/Online-support-for-brain-injury-survivors-and-caregivers-1.png?resize=1024%2C576&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/11/Online-support-for-brain-injury-survivors-and-caregivers-1.png?resize=768%2C432&amp;ssl=1 768w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/11/Online-support-for-brain-injury-survivors-and-caregivers-1.png?resize=1536%2C864&amp;ssl=1 1536w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/11/Online-support-for-brain-injury-survivors-and-caregivers-1.png?resize=1200%2C675&amp;ssl=1 1200w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="14085" data-permalink="https://www.jumbledbrain.com/online-support-for-brain-injury-survivors-and-caregivers/online-support-for-brain-injury-survivors-and-caregivers-4/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/11/Online-support-for-brain-injury-survivors-and-caregivers-1.png?fit=1600%2C900&amp;ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Online support for brain injury survivors and caregivers" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/11/Online-support-for-brain-injury-survivors-and-caregivers-1.png?fit=300%2C169&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/11/Online-support-for-brain-injury-survivors-and-caregivers-1.png?fit=580%2C326&amp;ssl=1" />															</div>
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									<p>Hospitals do a great job at saving lives, and they are under constant pressure to support the public with a variety of health issues. When a patient gets rushed in with a brain injury, they launch into action, working tirelessly to stabilise them. Sometimes this takes hours, sometimes it takes months, but I think it&#8217;s fair to say we are all thankful for the work they do.</p><p>But what many brain injury survivors, such as myself, too often find is that once they are sent home it&#8217;s difficult to get the right support. My partner James had to fight for someone to visit me at home to help me build up enough strength to have some independence. (Whilst I wasn&#8217;t shy about him having to help me shower, it wasn&#8217;t how I wanted to be left in my early 30&#8217;s.) And after talking to my GP I managed to be referred to a speech therapist . Bear in mind that at this stage my GP had no idea what had happened to me. Yes the hospital in London had updated my notes, but GP&#8217;s don&#8217;t review them unless you are sat in front of them. So why the hospital hadn&#8217;t made the effort to make this referral as they kicked me out, I don&#8217;t know.</p>								</div>
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									<p>But even after I had accessed this help (and believe me the speech therapist was AMAZING) there was still a disconnect. My world had been turned upside down and I somehow needed to process that. The trouble was, at that stage I didn&#8217;t have the insight to be able to work that out for myself.It took months to get support with my failing mental health, and there were times that I wasn&#8217;t sure I&#8217;d make it.</p><p>But thank goodness I did! And now I want to help plug that Grand Cannon sized gap. I&#8217;m not a therapist, so if you are being swallowed up by serious depression, bipolar or any other painful mental health disorder there are others out there, such as <a href="https://www.betterhelp.com/online-therapy/">Betterhelp</a> who can help you. But what I can offer you is the insight that all too often brain injury survivors don&#8217;t have.</p><p>I&#8217;ve been there, walked that terrible confusing road, and found the hidden path home. So now I coach others on how to navigate that journey too. There&#8217;s a lot of potholes you have to side step, and hanging branches that you have to duck, so guidance can make all the difference. And I do this online, so we don&#8217;t even need to live near each other. I have an incredible <a href="https://www.facebook.com/groups/braininjurysupportuk/">Facebook group</a> full with people who are keen to share ideas. But also I use the internet to speak to people via Messenger or Skype, to talk to them privately about what is going on for them and develop a plan to help get them to a more comfortable position.</p><p>So my message is this: even if you live in an area where there aren&#8217;t many services, you don&#8217;t have to fight this on your own. You do have options! For more ideas on online communities I&#8217;ve created that you might want to become a part of, visit <a href="https://www.jumbledbrain.com/brain-injury-community/">Brain injury community.</a></p>								</div>
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					<h4 class="elementor-heading-title elementor-size-default">Does online support work?</h4>				</div>
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									<p>Here in the UK we have access to health services available via the NHS, which we pay for via our taxes. But it is under continuing pressure to deliver more with less funding. In the UK, mental health conditions make up around 28 per cent of the total burden of disease, but they receive <a class="bb-a" href="https://www.theguardian.com/society/2016/may/09/nhs-mental-health-funding-is-still-lagging-behind-says-report">just 13 per cent of the total NHS budget</a>. Meanwhile, the budget for adult social care, which provides ongoing mental health support, has been <a class="bb-a" href="https://www.ifs.org.uk/uploads/publications/bns/BN200.pdf">cut in real terms</a> by 13.5 per cent in England over the last eight years. This makes it even harder to get on the waiting list for talking therapies, and when you do you could be on there for an extraordinarily long time before you see anyone. And for those countries that usually pay via medical insurance, you often are given limited choices about who you can work with. So what if the person you need to open up to, trust and connect with just doesn&#8217;t make you comfortable enough to do that?</p><p>With online support you can be in your comfortable space at home where you feel safe. There&#8217;s no issues with having to work out how you are going to get to your appointment; organising transport, negotiating traffic and the panic of worry that you might be late and then you&#8217;ve gone through all that stress for nothing.</p><p>I went to a life coach who lives in Canada. I can&#8217;t remember how I found her, and she was specialising in helping people run an online business. But I connected with her and felt like she really GOT ME. So even though the time difference meant we both had to do some jiggery pokery with our schedules in order to be able to chat because of the time difference, believe me, it&#8217;s worth it! The amount of times I would find myself crying because she had hit the nail on the head about something that I didn&#8217;t even know was a problem because I&#8217;d buried it so deep. That would lead to me being able to address things that I might not have even know were relevant to why I was holding myself back from achieving my goals. Honestly it&#8217;s such a journey of discovery when you connect with the right person. Yes online support does work because it enables you to have so many more options about finding the right person to help you develop yourself. It opens up a whole new world to you.</p>								</div>
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									<p>This post is sponsored by Betterhelp. More online therapists can be found <a href="https://www.onlinecounselling.com/online-counseling/">here</a>. All reviews and opinions expressed in this post are based on my personal view.</p>								</div>
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									<p>Other articles you may like:</p><ul><li><a href="https://www.jumbledbrain.com/2020/01/25/guest-post-hope-clark-on-my-new-normal-following-her-brain-injury/">Guest post: Hope Clark on &#8220;My new normal&#8221; following her brain injury.</a></li><li><a href="https://www.jumbledbrain.com/2019/12/17/exercise-can-help-brain-injury/">Exercise can help your brain injury, not just your muscles</a></li><li><a href="https://www.jumbledbrain.com/2019/10/29/brain-injury-survivor-explains-why-your-career-isnt-your-self-worth/">Brain injury survivor explains why your career isn&#8217;t your self-worth</a></li><li><a href="https://www.jumbledbrain.com/2019/10/02/brain-injury-survivors-bad-brain-days/">Brain injury survivors bad brain days leads to trouble</a></li><li><a href="https://www.jumbledbrain.com/2019/09/16/how-excitement-can-lead-to-brain-injury-survivor-burnout/">How excitement can lead to brain injury survivor burnout</a></li></ul>								</div>
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					<h3 class="elementor-heading-title elementor-size-default">Have you tried online support for your experience of brain injury? Did it work for you?</h3>				</div>
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		<p>The post <a href="https://www.jumbledbrain.com/online-support-for-brain-injury-survivors-and-caregivers/">Online support for brain injury survivors and caregivers</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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		<title>Guest post: Rich Parry-Jones, brain injury survivors husband &#038; carer.</title>
		<link>https://www.jumbledbrain.com/guest-post-rich-parry-jones-brain-injury-husband-and-carer/</link>
					<comments>https://www.jumbledbrain.com/guest-post-rich-parry-jones-brain-injury-husband-and-carer/#comments</comments>
		
		<dc:creator><![CDATA[Michelle #jumbledbrain]]></dc:creator>
		<pubDate>Mon, 26 Feb 2018 10:05:15 +0000</pubDate>
				<category><![CDATA[Brain injury, TBI, ABI]]></category>
		<category><![CDATA[Guest post]]></category>
		<category><![CDATA[brain injury]]></category>
		<category><![CDATA[carers]]></category>
		<category><![CDATA[chronic illness]]></category>
		<category><![CDATA[expectations]]></category>
		<category><![CDATA[family]]></category>
		<category><![CDATA[husband & carer]]></category>
		<category><![CDATA[patience]]></category>
		<category><![CDATA[positive]]></category>
		<category><![CDATA[social groups]]></category>
		<category><![CDATA[support]]></category>
		<category><![CDATA[understanding]]></category>
		<guid isPermaLink="false">https://www.jumbledbrain.com/?p=3540</guid>

					<description><![CDATA[<p>I have talked before in Support carers about how important family of brain injury survivors are. Their attitude and approach can make a huge difference. So for the first time I have invited a husband &#38; carer to give his valuable input. I introduce to you Rich Parry-Jones: Always look for the positives, however small [&#8230;]</p>
<p>The post <a href="https://www.jumbledbrain.com/guest-post-rich-parry-jones-brain-injury-husband-and-carer/">Guest post: Rich Parry-Jones, brain injury survivors husband &#038; carer.</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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															<img loading="lazy" decoding="async" data-attachment-id="12994" data-permalink="https://www.jumbledbrain.com/guest-post-rich-parry-jones-brain-injury-husband-and-carer/perspective-of-a-husband-carer-of-a-brain-injury-survivor/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Perspective-of-a-husband-carer-of-a-brain-injury-survivor....png?fit=1024%2C512&amp;ssl=1" data-orig-size="1024,512" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Perspective of a husband &amp;#038; carer of a brain injury survivor&amp;#8230;" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Perspective-of-a-husband-carer-of-a-brain-injury-survivor....png?fit=300%2C150&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Perspective-of-a-husband-carer-of-a-brain-injury-survivor....png?fit=580%2C290&amp;ssl=1" width="1024" height="512" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Perspective-of-a-husband-carer-of-a-brain-injury-survivor....png?fit=1024%2C512&amp;ssl=1" class="attachment-full size-full wp-image-12994" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Perspective-of-a-husband-carer-of-a-brain-injury-survivor....png?w=1024&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Perspective-of-a-husband-carer-of-a-brain-injury-survivor....png?resize=300%2C150&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Perspective-of-a-husband-carer-of-a-brain-injury-survivor....png?resize=768%2C384&amp;ssl=1 768w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="12994" data-permalink="https://www.jumbledbrain.com/guest-post-rich-parry-jones-brain-injury-husband-and-carer/perspective-of-a-husband-carer-of-a-brain-injury-survivor/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Perspective-of-a-husband-carer-of-a-brain-injury-survivor....png?fit=1024%2C512&amp;ssl=1" data-orig-size="1024,512" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Perspective of a husband &amp;#038; carer of a brain injury survivor&amp;#8230;" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Perspective-of-a-husband-carer-of-a-brain-injury-survivor....png?fit=300%2C150&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Perspective-of-a-husband-carer-of-a-brain-injury-survivor....png?fit=580%2C290&amp;ssl=1" />															</div>
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									<p>I have talked before in <a href="https://www.jumbledbrain.com/support-carers/">Support carers</a> about how important family of brain injury survivors are. Their attitude and approach can make a huge difference. So for the first time I have invited a husband &amp; carer to give his valuable input. I introduce to you Rich Parry-Jones:</p>								</div>
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															<img loading="lazy" decoding="async" data-attachment-id="3547" data-permalink="https://www.jumbledbrain.com/guest-post-rich-parry-jones-brain-injury-husband-and-carer/rich-and-pauline-parry-jones/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Rich-and-Pauline-Parry-Jones.....jpg?fit=500%2C500&amp;ssl=1" data-orig-size="500,500" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Rich and Pauline Parry-Jones&amp;#8230;." data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Rich-and-Pauline-Parry-Jones.....jpg?fit=300%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Rich-and-Pauline-Parry-Jones.....jpg?fit=500%2C500&amp;ssl=1" width="500" height="500" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Rich-and-Pauline-Parry-Jones.....jpg?fit=500%2C500&amp;ssl=1" class="attachment-large size-large wp-image-3547" alt="Brain injury survivor Pauline, with her husband &amp; carer Rich." srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Rich-and-Pauline-Parry-Jones.....jpg?w=500&amp;ssl=1 500w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Rich-and-Pauline-Parry-Jones.....jpg?resize=150%2C150&amp;ssl=1 150w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Rich-and-Pauline-Parry-Jones.....jpg?resize=300%2C300&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Rich-and-Pauline-Parry-Jones.....jpg?resize=100%2C100&amp;ssl=1 100w" sizes="(max-width: 500px) 100vw, 500px" data-attachment-id="3547" data-permalink="https://www.jumbledbrain.com/guest-post-rich-parry-jones-brain-injury-husband-and-carer/rich-and-pauline-parry-jones/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Rich-and-Pauline-Parry-Jones.....jpg?fit=500%2C500&amp;ssl=1" data-orig-size="500,500" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Rich and Pauline Parry-Jones&amp;#8230;." data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Rich-and-Pauline-Parry-Jones.....jpg?fit=300%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2018/02/Rich-and-Pauline-Parry-Jones.....jpg?fit=500%2C500&amp;ssl=1" />															</div>
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									<h3 dir="ltr"><strong>Always look for the positives, however small they may be.</strong></h3><div dir="ltr">It’s 1 year and 1 day since my wife Pauline collapsed, suffering a subarachnoid haemorrhage. This year has been by far the toughest of my life but throughout there has been enough positives, for me to know that she/we will get through this.</div><div dir="ltr"> </div><div dir="ltr">As mad as it may seem, even when we were giving Pauline CPR I thought,  “thank god this has happened here” &#8230;. we were at friends house who is a nurse. Things could have been so much different,  had we not have been .</div><div dir="ltr">Having had Pauline rushed to the local hospital, then on to a specialist Neuro ward after discovering a bleed to the brain, we eventually got to speak to a consultant.</div><div dir="ltr"> </div><div dir="ltr">He explained all of the odds and Pauline against these had come through so far. I knew she was strong and I knew she was a fighter, so I knew she’d come through this.</div><div dir="ltr"> </div><div dir="ltr">My thoughts then turned to our family, making sure they were all alright, trying to reassure them that everything would be OK. I think some people worried that I was too calm  but I picked my moments, whilst alone to shed a tear or hold my head in my hands.</div><div dir="ltr"> </div><div dir="ltr">After 7 agonising hours that Pauline was in surgery, I bumped into her anaesthetist and he said “she&#8217;s OK”, the best two words I’ve ever heard. I knew from then on that if she could come through this, together we could get through anything. My thoughts then turned back to our 11 year old daughter, family, Pauline’s friends. All been so concerned. Then there was our business. There wasn’t time to feel sorry for myself, question &#8230;why us ? None of this would help, so I just thought what do I need to do next ?</div><div dir="ltr"> </div><div dir="ltr">Pauline was getting stronger by the day and apart from a very deep chest infection was recovering better than any of us could have hoped. I was travelling between our home in Shropshire and The Walton Centre in Liverpool. Not once did I think of it as being chore, as it’s what you do for someone you love.</div><div dir="ltr"> </div><div dir="ltr"><p>After 2 weeks we finally got her home. This was way ahead of the time you would expect for someone suffering from her brain injury. The following weeks were probably the toughest. Pauline has a huge amount of friends and although the majority meant well, it was very hard keeping them away. I’d started back at work, and keeping an eye on our business (a hairdressing salon). Plus, as well as the day to day family stuff and we always had visitors. There was no down time, no time for us to be alone.</p><p>After the initial two week onslaught of constant visitors, it was as if someone had flipped a switch. Only family and a few close friends kept in touch with Pauline and she was left very lonely. People you’d expect to be there for her weren’t and people you wouldn’t expect were. It was definitely an eye opener.</p><p>I knew as she got stronger and more confident this would ease, such as once she was able to get out in the car etc. However one of the major issues with a brain trauma is anxiety and Pauline was suffering terribly. I’d try to find time to get her out of the house but it was hard with all of the other commitments. Things were strained but I knew what we’d already been through and this couldn’t be as bad as that .</p><p>I knew the stronger she got, the easier things would become. They have over time become easier. Pauline has got stronger and although there is still a long way to go regarding her recovery we’re along way from the times where she would be crying uncontrollably and I wouldn’t be able to say or do anything right . I knew she didn’t want to feel this way and she’d do anything to feel normal again. I always had it in my head  however hard things were, that this is the same person I married, who I love so much and things will be better . Maybe not the same, maybe better. But when we’ve got each other, we can get through anything and that’s all that matters .</p><p> </p><hr /><p>I think you’ll agree that Rich is a wonderful husband &amp; carer to Pauline. Together they are a team, and draw strength from each other. If you’re ever in Ellesmere, Shropshire please book an appointment at their salon JS Hair. They have a passionate, and dedicated team. Pauline herself previously worked along side Trevor Sorbie MBE, 4 times winner of British Hairdresser of the year. Check them out on their <a href="https://uk.locale.online/j-s-hair-2013027447.html">Facebook page</a>.</p></div><div dir="ltr"> </div>								</div>
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									<div dir="ltr"><p>Other articles you may like<a href="https://www.jumbledbrain.com/2018/02/22/guest-post-jo-wood-brain-injury-this-is-me-no-apology/">:</a></p></div><ul><li dir="ltr"><a href="https://www.jumbledbrain.com/2018/02/22/guest-post-jo-wood-brain-injury-this-is-me-no-apology/">Guest post: Jo Wood, “Brain injury. This is me, no apology.“</a></li><li dir="ltr"><a href="https://www.jumbledbrain.com/2018/02/08/guest-post-jeff-huxford-on-accepting-life-post-brain-injury/">Guest post: Jeff Huxton on accepting life post brain injury</a>.</li><li dir="ltr"><a href="https://www.jumbledbrain.com/2017/07/31/life-post-brain-injury/">Life post brain injury: exclusive access to inside my head.</a></li><li dir="ltr"> <a href="https://www.jumbledbrain.com/2017/06/29/panicking-impedes-learning-brain-injury/">Panicking impedes learning after brain injury</a> .</li></ul>								</div>
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					<h3 class="elementor-heading-title elementor-size-default">What is the most important thing about the life partner/wife or husband &amp; carer in your life? Is there something you would like them to know?
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		<p>The post <a href="https://www.jumbledbrain.com/guest-post-rich-parry-jones-brain-injury-husband-and-carer/">Guest post: Rich Parry-Jones, brain injury survivors husband &#038; carer.</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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		<title>Do I tick the disabled box or not? Brain injury is more complicated than that.</title>
		<link>https://www.jumbledbrain.com/disabled-box-brain-injury/</link>
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		<dc:creator><![CDATA[Michelle #jumbledbrain]]></dc:creator>
		<pubDate>Mon, 08 May 2017 13:25:59 +0000</pubDate>
				<category><![CDATA[Brain injury, TBI, ABI]]></category>
		<category><![CDATA[definition]]></category>
		<category><![CDATA[discrimination]]></category>
		<category><![CDATA[forms]]></category>
		<category><![CDATA[paperwork]]></category>
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		<guid isPermaLink="false">https://www.jumbledbrain.com/?p=1784</guid>

					<description><![CDATA[<p>These days there&#8217;s a form  for everything. Some ask open questions and leave a section for you to write in an answer. Others it&#8217;s just a tick box exercise. The latter is probably more to make data entry easier, rather than to assist the person completing the form. And then it asks if you are [&#8230;]</p>
<p>The post <a href="https://www.jumbledbrain.com/disabled-box-brain-injury/">Do I tick the disabled box or not? Brain injury is more complicated than that.</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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															<img loading="lazy" decoding="async" data-attachment-id="16029" data-permalink="https://www.jumbledbrain.com/disabled-box-brain-injury/do-i-tick-the-disabled-box-or-not-brain-injury-is-more-complicated-than-that/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box-or-not-Brain-injury-is-more-complicated-than-that.png?fit=1600%2C900&amp;ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Do I tick the disabled box or not Brain injury is more complicated than that" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box-or-not-Brain-injury-is-more-complicated-than-that.png?fit=300%2C169&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box-or-not-Brain-injury-is-more-complicated-than-that.png?fit=580%2C326&amp;ssl=1" width="1600" height="900" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box-or-not-Brain-injury-is-more-complicated-than-that.png?fit=1600%2C900&amp;ssl=1" class="attachment-full size-full wp-image-16029" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box-or-not-Brain-injury-is-more-complicated-than-that.png?w=1600&amp;ssl=1 1600w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box-or-not-Brain-injury-is-more-complicated-than-that.png?resize=300%2C169&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box-or-not-Brain-injury-is-more-complicated-than-that.png?resize=1024%2C576&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box-or-not-Brain-injury-is-more-complicated-than-that.png?resize=768%2C432&amp;ssl=1 768w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box-or-not-Brain-injury-is-more-complicated-than-that.png?resize=1536%2C864&amp;ssl=1 1536w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box-or-not-Brain-injury-is-more-complicated-than-that.png?resize=1200%2C675&amp;ssl=1 1200w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="16029" data-permalink="https://www.jumbledbrain.com/disabled-box-brain-injury/do-i-tick-the-disabled-box-or-not-brain-injury-is-more-complicated-than-that/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box-or-not-Brain-injury-is-more-complicated-than-that.png?fit=1600%2C900&amp;ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Do I tick the disabled box or not Brain injury is more complicated than that" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box-or-not-Brain-injury-is-more-complicated-than-that.png?fit=300%2C169&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box-or-not-Brain-injury-is-more-complicated-than-that.png?fit=580%2C326&amp;ssl=1" />															</div>
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									<p>These days there&#8217;s a form  for everything. Some ask open questions and leave a section for you to write in an answer. Others it&#8217;s just a tick box exercise. The latter is probably more to make data entry easier, rather than to assist the person completing the form. And then it asks if you are disabled. But doesn&#8217;t clarify what counts, why it needs to know, or how being defined as such will help. I understand that because here in the UK we have the Disability Discrimination Act, it is to highlight the individual to avoid discrimination. But unless you know in what way someone is disabled, how do you assist them? I don&#8217;t think a brain injury fits into this exercise easily.</p><h4><span style="color: #003300;"><strong>My suspicion of such forms.</strong></span></h4><p>OK hands up, I know I&#8217;m overreacting. But here&#8217;s why: Some of you will know my Mum was Irish. She always felt forms asking about ethnicity were discriminatory, if they asked specifically if you are Irish. Previously I wrote in <a href="https://www.jumbledbrain.com/2017/01/10/cognitive-brain-injury/">Agony of cognitive tailspin after brain injury</a> about how Mum was proud to be Irish. She was acutely aware of how the rocky historic relationship between Great Britain and sectors of the Republic of Ireland, coloured some peoples view. So she questioned why they had sections for both Irish and European. As the Republic of Ireland are in the EU, Irish citizens could just tick European.</p><p>Mum was suspicious of being badly labelled because of the activities of the IRA. Most likely she was over imaginative, but no form should intimidate you this way.  She was trying to understand why they needed to know when an individual is from that specific island. And I find myself now doing the same with the disability box.</p>								</div>
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															<img loading="lazy" decoding="async" data-attachment-id="15146" data-permalink="https://www.jumbledbrain.com/disabled-box-brain-injury/do-i-tick-the-disabled-box-or-not-brain-injury-is-more-complicated-than-that-1/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-Box-or-not-Brain-injury-is-more-Complicated-than-that.-1.png?fit=1080%2C1080&amp;ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Do I tick the disabled Box or not Brain injury is more Complicated than that. (1)" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-Box-or-not-Brain-injury-is-more-Complicated-than-that.-1.png?fit=300%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-Box-or-not-Brain-injury-is-more-Complicated-than-that.-1.png?fit=580%2C580&amp;ssl=1" width="580" height="580" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-Box-or-not-Brain-injury-is-more-Complicated-than-that.-1.png?fit=580%2C580&amp;ssl=1" class="attachment-medium_large size-medium_large wp-image-15146" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-Box-or-not-Brain-injury-is-more-Complicated-than-that.-1.png?w=1080&amp;ssl=1 1080w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-Box-or-not-Brain-injury-is-more-Complicated-than-that.-1.png?resize=300%2C300&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-Box-or-not-Brain-injury-is-more-Complicated-than-that.-1.png?resize=1024%2C1024&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-Box-or-not-Brain-injury-is-more-Complicated-than-that.-1.png?resize=150%2C150&amp;ssl=1 150w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-Box-or-not-Brain-injury-is-more-Complicated-than-that.-1.png?resize=768%2C768&amp;ssl=1 768w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="15146" data-permalink="https://www.jumbledbrain.com/disabled-box-brain-injury/do-i-tick-the-disabled-box-or-not-brain-injury-is-more-complicated-than-that-1/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-Box-or-not-Brain-injury-is-more-Complicated-than-that.-1.png?fit=1080%2C1080&amp;ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Do I tick the disabled Box or not Brain injury is more Complicated than that. (1)" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-Box-or-not-Brain-injury-is-more-Complicated-than-that.-1.png?fit=300%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-Box-or-not-Brain-injury-is-more-Complicated-than-that.-1.png?fit=580%2C580&amp;ssl=1" />															</div>
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									<h4><span style="color: #003300;"><strong>I&#8217;m not registered disabled, because you can&#8217;t.</strong></span></h4><p>Most people think the easy answer to this is, only tick &#8220;yes&#8221; if you are registered disabled.  But there is no such thing anymore. There are some Government benefits you might be entitled to, but if you don&#8217;t qualify there is no other database you can be registered on. This was a result of the Disability Discrimination Act coming into force in 1995. That was when the country started to realise that as disability doesn&#8217;t have to be physical, so dropped the register.</p><p>If students have conditions such as dyslexia, it&#8217;s important they inform the school or college. This is because in exams they will be given extra time. It&#8217;s important because the student may have the right answers, but needs extra time to be able to process the question and submit an answer. So it&#8217;s not enough to tick the disability box in this example, they need to know how to support them. Otherwise if the school provided a ramp for wheelchairs, but not extra time, the box did not prevent discrimination.</p><h4><span style="color: #003300;"><strong>The term is very broad so I&#8217;m not sure how it helps.</strong></span></h4><p>If the box might not prevent me from being discriminated against, why would I want this label? I have enough pointless labels as it is, thanks very much. In <a href="https://www.jumbledbrain.com/2016/10/06/brain-injury-the-invisible-disability/">Living with invisible disability caused by brain injury</a> I was pointing out how there are times I wish the public knew they needed to cut me some slack. I meant things like don&#8217;t shove past me when you&#8217;re in a hurry, as my weak leg and poor balance might make me fall over. I don&#8217;t mean I want a neon light flashing over my head saying &#8220;Give this one a wide berth as it&#8217;s faulty.&#8221;</p><p>I&#8217;m sure there a hoards of people who disagree with me and find the disability box very useful. But recently I was at an appointment with a new therapist, and I asked it the box meant things like blind, deaf etc. Having told her I had a brain injury she asked if I was registered disabled. As I&#8217;m not (at this point I didn&#8217;t know that this is defunct) she said I should leave it. However, by the end of the session, having learned more about me she decided to reverse that decision. So there are probably a huge proportion of people who don&#8217;t tick the box, when in fact they should. But if there isn&#8217;t going to be an explanation of how you qualify in a tangible way, or what the use of this information is, it&#8217;s as much use as a chocolate tea pot.</p><div style="display: none;"><img loading="lazy" decoding="async" data-attachment-id="2967" data-permalink="https://www.jumbledbrain.com/disabled-box-brain-injury/do-i-or-dont-tick-the-disable-box-brain-injury-is-complicated/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-or-dont-tick-the-disable-box-Brain-injury-is-complicated....png?fit=800%2C1200&amp;ssl=1" data-orig-size="800,1200" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Do I or don&amp;#8217;t tick the disable box- Brain injury is complicated&amp;#8230;" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-or-dont-tick-the-disable-box-Brain-injury-is-complicated....png?fit=200%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-or-dont-tick-the-disable-box-Brain-injury-is-complicated....png?fit=580%2C870&amp;ssl=1" data-recalc-dims="1" class="aligncenter size-full wp-image-2967" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-or-dont-tick-the-disable-box-Brain-injury-is-complicated....png?resize=580%2C870&#038;ssl=1" alt="Forms ask are you disabled to avoid discrimination. If they don't ask for details, how's this label going to help? Doesn't help understand my brain injury." width="580" height="870" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-or-dont-tick-the-disable-box-Brain-injury-is-complicated....png?w=800&amp;ssl=1 800w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-or-dont-tick-the-disable-box-Brain-injury-is-complicated....png?resize=200%2C300&amp;ssl=1 200w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-or-dont-tick-the-disable-box-Brain-injury-is-complicated....png?resize=768%2C1152&amp;ssl=1 768w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-or-dont-tick-the-disable-box-Brain-injury-is-complicated....png?resize=683%2C1024&amp;ssl=1 683w" sizes="(max-width: 580px) 100vw, 580px" /></div><div style="display: none;"><img loading="lazy" decoding="async" data-attachment-id="2086" data-permalink="https://www.jumbledbrain.com/disabled-box-brain-injury/do-i-tick-the-disabled-box/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box.png?fit=800%2C1200&amp;ssl=1" data-orig-size="800,1200" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Do I tick the disabled box" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box.png?fit=200%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box.png?fit=580%2C870&amp;ssl=1" data-recalc-dims="1" class="aligncenter size-full wp-image-2086" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box.png?resize=580%2C870&#038;ssl=1" alt="My blog on living with brain injury: Do I tick the disabled box?" width="580" height="870" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box.png?w=800&amp;ssl=1 800w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box.png?resize=200%2C300&amp;ssl=1 200w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box.png?resize=768%2C1152&amp;ssl=1 768w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/05/Do-I-tick-the-disabled-box.png?resize=683%2C1024&amp;ssl=1 683w" sizes="(max-width: 580px) 100vw, 580px" /></div>								</div>
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									<p>Other articles you might like:</p><ul><li><a href="https://www.jumbledbrain.com/2017/09/13/brain-injury-creative/">How a sudden brain injury is like entering uncharted waters</a></li><li><a href="https://www.jumbledbrain.com/2017/09/13/brain-injury-creative/">Can a brain injury make you more creative?</a></li><li><a href="https://www.jumbledbrain.com/2016/09/20/light-and-noise-sensitivity/">Light and Noise Sensitivity.</a></li><li><a href="https://www.jumbledbrain.com/2017/06/07/memory-do-i-know-brain-injury/">&#8220;Yes, I know you..&#8221;, or do I? Brain injury makes a mishmash of my memory again.</a></li><li><a href="https://www.jumbledbrain.com/2016/11/23/inferior-senses-brain-injury/">Inferior senses corrupted by brain injury</a>.</li><li><a href="https://www.jumbledbrain.com/2016/11/04/frustratingly-dreadful-with-dates-thanks-brain-injury/">Frustratingly dreadful with dates, thanks brain injury.</a></li><li><a href="https://www.jumbledbrain.com/2016/11/12/advice-on-driving-after-brain-injury/">Important advice on driving after a brain injury.</a></li></ul>								</div>
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					<h3 class="elementor-heading-title elementor-size-default">Do you find being classed as disabled on paper assists you? I'm not sure a brain injury would ever not qualify, but have professionals ever argued this with you?</h3>				</div>
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		<p>The post <a href="https://www.jumbledbrain.com/disabled-box-brain-injury/">Do I tick the disabled box or not? Brain injury is more complicated than that.</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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		<title>Confess to pressure: being a voice of brain injury</title>
		<link>https://www.jumbledbrain.com/confess-pressure-brain-injury/</link>
					<comments>https://www.jumbledbrain.com/confess-pressure-brain-injury/#comments</comments>
		
		<dc:creator><![CDATA[Michelle #jumbledbrain]]></dc:creator>
		<pubDate>Mon, 10 Apr 2017 13:45:44 +0000</pubDate>
				<category><![CDATA[Brain injury, TBI, ABI]]></category>
		<category><![CDATA[communication]]></category>
		<category><![CDATA[expectations]]></category>
		<category><![CDATA[family]]></category>
		<category><![CDATA[help]]></category>
		<category><![CDATA[limitations]]></category>
		<category><![CDATA[one woman]]></category>
		<category><![CDATA[pressure]]></category>
		<category><![CDATA[priorities]]></category>
		<category><![CDATA[support]]></category>
		<category><![CDATA[too much]]></category>
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					<description><![CDATA[<p>I knew that it was important to raise awareness and understanding of brain injury. That&#8217;s why I started this blog. Not to be liked or make friends, although I do enjoy the positive vibe I get from many of you, and have &#8220;virtually&#8221; met some amazing people.  But that is a fringe benefit, not the [&#8230;]</p>
<p>The post <a href="https://www.jumbledbrain.com/confess-pressure-brain-injury/">Confess to pressure: being a voice of brain injury</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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															<img loading="lazy" decoding="async" data-attachment-id="16460" data-permalink="https://www.jumbledbrain.com/confess-pressure-brain-injury/confess-to-pressure-being-a-voice-of-brain-injury/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-Being-a-voice-of-brain-injury.png?fit=1600%2C900&amp;ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Confess to pressure Being a voice of brain injury" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-Being-a-voice-of-brain-injury.png?fit=300%2C169&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-Being-a-voice-of-brain-injury.png?fit=580%2C326&amp;ssl=1" width="1600" height="900" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-Being-a-voice-of-brain-injury.png?fit=1600%2C900&amp;ssl=1" class="attachment-full size-full wp-image-16460" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-Being-a-voice-of-brain-injury.png?w=1600&amp;ssl=1 1600w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-Being-a-voice-of-brain-injury.png?resize=300%2C169&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-Being-a-voice-of-brain-injury.png?resize=1024%2C576&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-Being-a-voice-of-brain-injury.png?resize=768%2C432&amp;ssl=1 768w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-Being-a-voice-of-brain-injury.png?resize=1536%2C864&amp;ssl=1 1536w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-Being-a-voice-of-brain-injury.png?resize=1200%2C675&amp;ssl=1 1200w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="16460" data-permalink="https://www.jumbledbrain.com/confess-pressure-brain-injury/confess-to-pressure-being-a-voice-of-brain-injury/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-Being-a-voice-of-brain-injury.png?fit=1600%2C900&amp;ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Confess to pressure Being a voice of brain injury" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-Being-a-voice-of-brain-injury.png?fit=300%2C169&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-Being-a-voice-of-brain-injury.png?fit=580%2C326&amp;ssl=1" />															</div>
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									<p>I knew that it was important to raise awareness and understanding of brain injury. That&#8217;s why I started this blog. Not to be liked or make friends, although I do enjoy the positive vibe I get from many of you, and have &#8220;virtually&#8221; met some amazing people.  But that is a fringe benefit, not the motivating factor for why I do this. I realised my understanding of brain injury before my accident was woeful, as was that of most people I know. And I believe that we are a fair reflection of the general public&#8217;s knowledge on the subject. But I confess I probably didn&#8217;t anticipate the level of responsibility I was bestowing on myself. I&#8217;m not going to stop, as the subject is more important than me as an individual. I&#8217;m just asking for your forgiveness for times I don&#8217;t meet your expectations.</p><h4><span style="color: #003300;"><strong>Trying to reach out to others.</strong></span></h4><p>I&#8217;m not Mother Theresa, and I&#8217;m definitely not looking for thanks. Actually many send me their thanks, which is lovely of them. But I hope in some small way to help families affected by brain injury by blogging about my experience. My family really didn&#8217;t understand it, even though my Aunt suffered a very serious brain injury 30 years ago. But as my parents had moved miles away, they didn&#8217;t really experience what that meant for her on a daily basis. So when I had my accident it was a confusing time for all of us. I know that was difficult for me, and I can only imagine how distressing it was/is for them.</p><h4><span style="color: #003300;"><strong>But I confess I have my limitations.</strong></span></h4><p>I&#8217;m not an expert in any stretch of the imagination, so whilst I give suggestions to help, they will not always help everyone. I think most people understand that and many offer their own suggestions too, which is great. The thing I find harder to deal with are those who don&#8217;t understand who or what I am. Some people expect me to be on a more personal level with them. Don&#8217;t get me wrong, I enjoy our honesty with each other and I think it&#8217;s really helpful. But there just isn&#8217;t enough of me to go round for me to start phoning people. A handful of people are generously offering their friendship in the form of telephone conversations. Whilst I appreciate how this is offered out of the goodness of their hearts, I have to decline each time. I just don&#8217;t have the energy. It was a long time before I even opened up to my &#8220;real world friends&#8221;, as I explained in <a href="https://www.jumbledbrain.com/2017/04/13/friends-agony-brain-injury/">Friends agony of my brain injury I didn&#8217;t let her help with.</a> So please don&#8217;t take it personally when I decline.</p><div style="display: none;"><img loading="lazy" decoding="async" data-attachment-id="3135" data-permalink="https://www.jumbledbrain.com/confess-pressure-brain-injury/confess-to-pressure-from-demanding-people-being-a-voice-for-brain-injury/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-from-demanding-people-Being-a-voice-for-brain-injury....png?fit=800%2C1200&amp;ssl=1" data-orig-size="800,1200" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Confess to pressure from demanding people &amp;#8211; Being a voice for brain injury&amp;#8230;" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-from-demanding-people-Being-a-voice-for-brain-injury....png?fit=200%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-from-demanding-people-Being-a-voice-for-brain-injury....png?fit=580%2C870&amp;ssl=1" data-recalc-dims="1" class="aligncenter wp-image-3135 size-full" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-from-demanding-people-Being-a-voice-for-brain-injury....png?resize=580%2C870&#038;ssl=1" alt="I want to help, but I'm just one brain injured woman. Still some people continue to try to push me too far. I have to accept my limitations, &amp; so do you ...." width="580" height="870" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-from-demanding-people-Being-a-voice-for-brain-injury....png?w=800&amp;ssl=1 800w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-from-demanding-people-Being-a-voice-for-brain-injury....png?resize=200%2C300&amp;ssl=1 200w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-from-demanding-people-Being-a-voice-for-brain-injury....png?resize=768%2C1152&amp;ssl=1 768w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-from-demanding-people-Being-a-voice-for-brain-injury....png?resize=683%2C1024&amp;ssl=1 683w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-pressure-from-demanding-people-Being-a-voice-for-brain-injury....png?resize=300%2C450&amp;ssl=1 300w" sizes="(max-width: 580px) 100vw, 580px" /><br /><img loading="lazy" decoding="async" data-attachment-id="2098" data-permalink="https://www.jumbledbrain.com/confess-pressure-brain-injury/confess-to-pressure-3/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-3.png?fit=800%2C1200&amp;ssl=1" data-orig-size="800,1200" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Confess to Pressure (3)" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-3.png?fit=200%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-3.png?fit=580%2C870&amp;ssl=1" data-recalc-dims="1" class="aligncenter size-full wp-image-2098" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-3.png?resize=580%2C870&#038;ssl=1" alt="My blog on living with brain injury: I speak out for brain injury survivors, but sometimes I can't meet everyone's expectations." width="580" height="870" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-3.png?w=800&amp;ssl=1 800w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-3.png?resize=200%2C300&amp;ssl=1 200w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-3.png?resize=768%2C1152&amp;ssl=1 768w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-3.png?resize=683%2C1024&amp;ssl=1 683w" sizes="(max-width: 580px) 100vw, 580px" /></div>								</div>
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															<img loading="lazy" decoding="async" data-attachment-id="13414" data-permalink="https://www.jumbledbrain.com/confess-pressure-brain-injury/confess-to-pressure-being-a-voice-of-brain-injury-2/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-being-a-voice-of-brain-injury-.png?fit=1080%2C1080&amp;ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Confess to Pressure being a voice of brain injury" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-being-a-voice-of-brain-injury-.png?fit=300%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-being-a-voice-of-brain-injury-.png?fit=580%2C580&amp;ssl=1" width="580" height="580" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-being-a-voice-of-brain-injury-.png?fit=580%2C580&amp;ssl=1" class="attachment-medium_large size-medium_large wp-image-13414" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-being-a-voice-of-brain-injury-.png?w=1080&amp;ssl=1 1080w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-being-a-voice-of-brain-injury-.png?resize=300%2C300&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-being-a-voice-of-brain-injury-.png?resize=1024%2C1024&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-being-a-voice-of-brain-injury-.png?resize=150%2C150&amp;ssl=1 150w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-being-a-voice-of-brain-injury-.png?resize=768%2C768&amp;ssl=1 768w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="13414" data-permalink="https://www.jumbledbrain.com/confess-pressure-brain-injury/confess-to-pressure-being-a-voice-of-brain-injury-2/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-being-a-voice-of-brain-injury-.png?fit=1080%2C1080&amp;ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Confess to Pressure being a voice of brain injury" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-being-a-voice-of-brain-injury-.png?fit=300%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/04/Confess-to-Pressure-being-a-voice-of-brain-injury-.png?fit=580%2C580&amp;ssl=1" />															</div>
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									<p>So this is me apologising for letting people down. I didn&#8217;t think through how some people need someone to talk to, not just write, and they might choose me. I&#8217;m flattered and I do genuinely care and want to support you. But I have to recognise what I can commit to. I know many feel that some important people in their lives have turned their backs on them, and I&#8217;m not doing that to you. But I have to pace myself. If you read this regularly you will know I am also dealing with my terminally ill Dad as well as my own recovery process. So I&#8217;m running at full capacity, which I must confess is a struggle. I&#8217;m all he&#8217;s got right now so I have to give him everything I can.</p><p>I still reply to emails and comments as you are important to me. But I&#8217;m just one woman who is doing her best, so I&#8217;m sorry I can&#8217;t offer you more. This isn&#8217;t me asking for pity, just forgiveness for not being able to meet everyone&#8217;s expectations. </p><p>You can read my tips on how to improve at dealing with trying situations at <a href="https://www.jumbledbrain.com/2017/03/02/impatient-tips-brain-injury/">Impatient insight. 5 tips on building tolerance after brain injury</a>.</p><h3><span style="text-decoration: underline;"><span style="color: #003300; text-decoration: underline;">2018 UPDATE</span></span></h3><p>Now you can get my <a href="https://www.jumbledbrain.com/6-week-program/">6 week course, Surviving to Thriving,</a> which is 6 pre recorded videos which help you rediscover your inner peace and confidence. This way I can still support you and you can get it at a time that works for you.</p>								</div>
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									<p>Other articles you might like:</p><ul><li><a href="https://www.jumbledbrain.com/2017/11/23/brain-injury-isnt-part-time-ailment/">A brain injury isn&#8217;t a part-time ailment.</a></li><li><a href="https://www.jumbledbrain.com/2017/02/28/fall-asleep-brain-injury/">Fall asleep faster. Tips to give brain injury cold-shoulder.</a></li><li><a href="https://www.jumbledbrain.com/2016/10/20/socialising-after-brain-injury/">The gamble of socialising after brain injury.</a></li><li><a href="https://www.jumbledbrain.com/2017/01/06/mourning-me-brain-injury/">Mourning me and insecure after brain injury.</a></li><li><a href="https://www.jumbledbrain.com/2016/11/25/i-dont-understand-after-my-brain-injury/">I don&#8217;t understand after my brain injury.</a></li></ul>								</div>
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		<p>The post <a href="https://www.jumbledbrain.com/confess-pressure-brain-injury/">Confess to pressure: being a voice of brain injury</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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		<title>Relationships vanish magnifying the trauma of brain injury</title>
		<link>https://www.jumbledbrain.com/relationships-vanish-brain-injury/</link>
					<comments>https://www.jumbledbrain.com/relationships-vanish-brain-injury/#comments</comments>
		
		<dc:creator><![CDATA[Michelle #jumbledbrain]]></dc:creator>
		<pubDate>Mon, 20 Mar 2017 15:37:12 +0000</pubDate>
				<category><![CDATA[Brain injury, TBI, ABI]]></category>
		<category><![CDATA[alzehiemers]]></category>
		<category><![CDATA[carers]]></category>
		<category><![CDATA[dementia]]></category>
		<category><![CDATA[friends]]></category>
		<category><![CDATA[friendship]]></category>
		<category><![CDATA[grief]]></category>
		<category><![CDATA[loss]]></category>
		<category><![CDATA[memory]]></category>
		<category><![CDATA[perspective]]></category>
		<category><![CDATA[support]]></category>
		<category><![CDATA[understanding]]></category>
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					<description><![CDATA[<p>Nothing about living with a brain injury is easy. But time and again I hear how survivors feel abandoned by their friends and family. For anyone it is difficult when key members of their social network do a vanishing act on them. But when your world has been turned upside down, and it&#8217;s void of [&#8230;]</p>
<p>The post <a href="https://www.jumbledbrain.com/relationships-vanish-brain-injury/">Relationships vanish magnifying the trauma of brain injury</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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															<img loading="lazy" decoding="async" data-attachment-id="16708" data-permalink="https://www.jumbledbrain.com/relationships-vanish-brain-injury/relationships-vanish-magnifying-the-trauma-of-brain-injury-4/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury.png?fit=1600%2C900&amp;ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Relationships vanish magnifying the trauma of brain injury" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury.png?fit=300%2C169&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury.png?fit=580%2C326&amp;ssl=1" width="1600" height="900" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury.png?fit=1600%2C900&amp;ssl=1" class="attachment-full size-full wp-image-16708" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury.png?w=1600&amp;ssl=1 1600w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury.png?resize=300%2C169&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury.png?resize=1024%2C576&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury.png?resize=768%2C432&amp;ssl=1 768w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury.png?resize=1536%2C864&amp;ssl=1 1536w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury.png?resize=1200%2C675&amp;ssl=1 1200w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="16708" data-permalink="https://www.jumbledbrain.com/relationships-vanish-brain-injury/relationships-vanish-magnifying-the-trauma-of-brain-injury-4/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury.png?fit=1600%2C900&amp;ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Relationships vanish magnifying the trauma of brain injury" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury.png?fit=300%2C169&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury.png?fit=580%2C326&amp;ssl=1" />															</div>
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									<p>Nothing about living with a brain injury is easy. But time and again I hear how survivors feel abandoned by their friends and family. For anyone it is difficult when key members of their social network do a vanishing act on them. But when your world has been turned upside down, and it&#8217;s void of those relationships, it can be soul destroying. However, that doesn&#8217;t mean they are bad people, just that they are struggling too. I have written in two other guest blogs about how not long after my car accident, my Dad was diagnosed with Alzheimer&#8217;s (a form of dementia).</p><p><a href="http://www.maddyathome.com/retired/alzheimers/">Maddy at home &#8211; Alzheimer&#8217;s </a> where I try to explain how I tried to support his independence in the early stages of his condition.</p><p><a href="http://www.braininjuryhub.co.uk/news/you-are-only-one-decision-away-from-a-totally-different-life">The brain injury hub &#8211; One decision away from a different life</a> &#8211; I touched on how my experience of brain injury gave me an advantage when trying to understand what he was going through.</p><p>Effectively I have walked on both sides of the cursed coin. And I can tell you, they are both difficult. I have made loads of mistakes, and I&#8217;m not proud of them. But I&#8217;m hoping I can help those who are questioning others behaviour. I&#8217;m not going to attempt to solve the issue, because I can&#8217;t. But perhaps I can help people forgive and begin the next stage of their journey.</p>								</div>
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															<img loading="lazy" decoding="async" data-attachment-id="14339" data-permalink="https://www.jumbledbrain.com/relationships-vanish-brain-injury/relationships-vanish-magnifying-the-trauma-of-brain-injury-3/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-Vanish-Magnifying-the-trauma-of-brain-injury...-1.png?fit=1080%2C1080&amp;ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Relationships Vanish Magnifying the trauma of brain injury&amp;#8230;" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-Vanish-Magnifying-the-trauma-of-brain-injury...-1.png?fit=300%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-Vanish-Magnifying-the-trauma-of-brain-injury...-1.png?fit=580%2C580&amp;ssl=1" width="580" height="580" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-Vanish-Magnifying-the-trauma-of-brain-injury...-1.png?fit=580%2C580&amp;ssl=1" class="attachment-medium_large size-medium_large wp-image-14339" alt="" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-Vanish-Magnifying-the-trauma-of-brain-injury...-1.png?w=1080&amp;ssl=1 1080w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-Vanish-Magnifying-the-trauma-of-brain-injury...-1.png?resize=300%2C300&amp;ssl=1 300w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-Vanish-Magnifying-the-trauma-of-brain-injury...-1.png?resize=1024%2C1024&amp;ssl=1 1024w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-Vanish-Magnifying-the-trauma-of-brain-injury...-1.png?resize=150%2C150&amp;ssl=1 150w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-Vanish-Magnifying-the-trauma-of-brain-injury...-1.png?resize=768%2C768&amp;ssl=1 768w" sizes="(max-width: 580px) 100vw, 580px" data-attachment-id="14339" data-permalink="https://www.jumbledbrain.com/relationships-vanish-brain-injury/relationships-vanish-magnifying-the-trauma-of-brain-injury-3/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-Vanish-Magnifying-the-trauma-of-brain-injury...-1.png?fit=1080%2C1080&amp;ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Relationships Vanish Magnifying the trauma of brain injury&amp;#8230;" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-Vanish-Magnifying-the-trauma-of-brain-injury...-1.png?fit=300%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-Vanish-Magnifying-the-trauma-of-brain-injury...-1.png?fit=580%2C580&amp;ssl=1" />															</div>
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									<h4><span style="color: #003300;">Facing a brain injury with a loss of relationships</span></h4><p>When something bad happens to you, or you&#8217;re just feeling down, most of us have someone who we turn to first for support. For me, which it is for many, that was my Mum. But she passed away suddenly just 3 weeks after my accident.  I&#8217;m still heartbroken about it, but at least I know she didn&#8217;t abandon me. So the pain I have felt in the absence of other key people of my social network has been different. I&#8217;ve gone through several stages in my grieving for these lost relationships.</p><ul><li><span style="color: #003300;"><strong>Denial</strong> </span>&#8211; To begin with I made excuses. <em>It&#8217;s not that they were avoiding me, it&#8217;s just that they were busy. Don&#8217;t worry, when they have a moment they&#8217;ll be in touch. </em>This happens because you have to pace your sense of loss, and as you have so much to contend with you park this issue for now.</li><li><span style="color: #003300;"><strong>Anger</strong></span> &#8211; When I finally had to admit some individuals were not going to see me, or pick up the phone, I became angry. This is just a part of the healing process. I know I would gladly have those people back, and would now welcome them with open arms. But you go through anger just because you care and miss them.  You feel let down and I was obsessed with the feeling of injustice. Embrace it, you need to express yourself. Just don&#8217;t shout at that person. Maybe privately write it down or go in another room to scream it out.</li><li><span style="color: #003300;"><strong>Bargaining</strong> </span>&#8211; Next we find a way to blame ourselves. <em>I&#8217;m grumpy, snappy and take forever to find my words, so I&#8217;m terrible company. I wouldn&#8217;t want to have to deal with me.</em> We are trying to find a way to identify the problem, so we might be able to find a solution. But the reality is, sometimes the decision is not ours to make. We might not like their choice to go on without us, but that&#8217;s their right.</li><li><span style="color: #003300;"><strong>Misery</strong></span> &#8211; I was so sad that those relationships were missing after my brain injury. This added to my depression and made me question my self worth. In a way our nervous system is just trying to take a well earned break. This is to give us a chance to adapt. Whilst this is painful, it is necessary in the same way the Australian bush experiences regular fires. It clears things and allows space for the next stage of growth.</li><li><span style="color: #003300;"><strong>Acceptance</strong> </span>&#8211; It&#8217;s not that I do or don&#8217;t agree those people should have walked away from me. But in the same way I have had to accept my Mum isn&#8217;t coming back, they have made their decisions and I respect that. There might be some learning points, or there might not. Either way, one just has to move on.</li></ul><div style="display: none;"><img loading="lazy" decoding="async" data-attachment-id="3024" data-permalink="https://www.jumbledbrain.com/relationships-vanish-brain-injury/relationships-vanish-magnifying-the-trauma-of-brain-injury/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury....png?fit=800%2C1200&amp;ssl=1" data-orig-size="800,1200" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Relationships vanish, magnifying the trauma of brain injury&amp;#8230;" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury....png?fit=200%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury....png?fit=580%2C870&amp;ssl=1" data-recalc-dims="1" class="aligncenter size-full wp-image-3024" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury....png?resize=580%2C870&#038;ssl=1" alt="When you have been through a threatening experience that has changed your life, that's when you need your friends the most. But what about when they turn their back on you?" width="580" height="870" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury....png?w=800&amp;ssl=1 800w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury....png?resize=200%2C300&amp;ssl=1 200w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury....png?resize=768%2C1152&amp;ssl=1 768w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish-magnifying-the-trauma-of-brain-injury....png?resize=683%2C1024&amp;ssl=1 683w" sizes="(max-width: 580px) 100vw, 580px" /><br /><img loading="lazy" decoding="async" data-attachment-id="2109" data-permalink="https://www.jumbledbrain.com/relationships-vanish-brain-injury/relationships-vanish/" data-orig-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish.png?fit=800%2C1200&amp;ssl=1" data-orig-size="800,1200" data-comments-opened="1" data-image-meta="{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}" data-image-title="Relationships vanish" data-image-description="" data-image-caption="" data-medium-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish.png?fit=200%2C300&amp;ssl=1" data-large-file="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish.png?fit=580%2C870&amp;ssl=1" data-recalc-dims="1" class="aligncenter size-full wp-image-2109" src="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish.png?resize=580%2C870&#038;ssl=1" alt="My blog on living with brain injury: How some people in your life can't be there once your ill." width="580" height="870" srcset="https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish.png?w=800&amp;ssl=1 800w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish.png?resize=200%2C300&amp;ssl=1 200w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish.png?resize=768%2C1152&amp;ssl=1 768w, https://i0.wp.com/www.jumbledbrain.com/wp-content/uploads/2017/03/Relationships-vanish.png?resize=683%2C1024&amp;ssl=1 683w" sizes="(max-width: 580px) 100vw, 580px" /></div>								</div>
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									<h4><span style="color: #003300;">How it feels facing a brain injury survivor</span></h4><p>I have had to witness my Dads&#8217; decline. Hopefully for many survivors they will have had a period of recovery, but may still have bad turns. Even though I can relate to his struggles, I have at times forgotten how he is different now. I just expect him to be the same, strong, clever, funny man he has always been. So when he says something silly, or keeps asking me the same thing again and again I can become frustrated.</p><p>There are times that I just don&#8217;t feel I have the emotional capacity to give him my patience. We never know what others are facing in their lives, and I know there are times I don&#8217;t call him because I know at that time I don&#8217;t have any more to give. I feel terrible about it, but when I&#8217;m drained I can do more damage than good. I might snap at him and that isn&#8217;t what he needs. So I think it&#8217;s better for us both if I retreat until I can have a more positive effect.</p><p>I am the youngest of his children, but as his power of attorney, I have now swapped roles with him and become the guardian. However, he is still fiercely independent which can lead to him picking the wrong battles. He wants to feel in control of his life and will refuse help. I know I have also been guilty of cutting off my nose to spite my face. Sometimes when he is like that I think <em>In that case, why do I bother?</em> I can be left temporarily feeling undervalued, and of no real use.</p><p>In fact I am grieving for the person he used to be. And believe me that&#8217;s a real challenge. In many ways I&#8217;m probably not meeting that challenge very well, but I&#8217;m trying. So perhaps those relationships we have lost happened because they care so much, they are grieving for us. In time all we can do is forgive, and open our hearts to accept our future.</p><p>I think this is a lot to go through, but on top of all that in <a href="https://www.jumbledbrain.com/2017/04/10/confess-pressure-brain-injury/">Confess to pressure: being a voice of brain injury</a>, I hit my full capacity.</p>								</div>
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									<p>Other articles you might like:</p><ul><li><a href="https://www.jumbledbrain.com/2017/06/07/memory-do-i-know-brain-injury/">&#8220;Yes, I know you..&#8221;, or do I? Brain injury makes a mishmash of my memory again.</a></li><li><a href="https://www.jumbledbrain.com/2017/05/11/exhausted-energy-brain-injury/">Exhausted energy levels. Brain injury can leave you high &amp; dry.</a></li><li><a href="https://www.jumbledbrain.com/2017/03/06/scramble-muddle-brain-injury/">Scramble consequence of brain injury. Unaware of the muddle.</a></li><li><a href="https://www.jumbledbrain.com/2017/02/22/multitask-fail-brain-injury/">Multitask plan doomed to fail after brain injury.</a></li><li><a href="https://www.jumbledbrain.com/2017/02/01/words-brain-injury/">Words rebel &amp; become unresponsive after brain injury.</a></li></ul>								</div>
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					<h3 class="elementor-heading-title elementor-size-default">Do you think your are or have been grieving for the loss of your relationships after your brain injury? Or am I wrong and they are just selfish?</h3>				</div>
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		<p>The post <a href="https://www.jumbledbrain.com/relationships-vanish-brain-injury/">Relationships vanish magnifying the trauma of brain injury</a> appeared first on <a href="https://www.jumbledbrain.com">Jumbledbrain</a>.</p>
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